But what is there to be said for knowing your limits?
For me, limits have been a tricky business these last couple
of years. I couldn’t ignore my diagnosis of my chronic illness, but I didn’t
want it to hold me back either. So, I would test just how far I could go
without it rolling out a huge STOP sign in the way of my plans. And whilst I
was on medication; that was sometimes higher than at other times. But, I learnt
quickly – especially when I was under the weather, under pressure, or even just
in a low mood - I would feel the full brunt of my disease holding up the STOP
sign earlier than I’d anticipated.
I would test myself. I would see how far I could go. I would
try and see how much I could take before the risks were outweighing the
benefits. And this is something I would continue to do for years. It would be my way of playing a little game with my illness,
to be so determined to not let it hold me back. But, in reality, I needed my
disease to kick off and tell me to slow down or stop. I needed to control me in
that particular way.
Why, I hear you
ask?
I needed limits.
Whilst being on medication and without any surgical
intervention; my limits became the symptoms that my disease was angry: Fatigue.
Lack of appetite. Bad bowels. Joint pains. Nausea. Sickness. Depression. Not
all of these things were solvable by pulling back and slowing down; they were
big signs that my disease was planning a big attack in the near future, but me
listening then, I would buy myself some time.
The tiredness, the fatigue; that was the worst. And it still
is now; after coming off medication since surgery, I have to say, I still get
the fatigue hit me like a sack of anything.
But in the years between learning to cope with my illness
and present day post-operative, I’ve taken some good advice: SELF CARE.
By practicing self-care, I know where my limits safety are.
I know where I feel most comfortable and where I am most at ease. It is where I
can do what I am capable of and some of the extra things I like doing: like
blogging, alongside something such as working. It has been about balance and
compromise. It has been a listening and responding aspect on my life I
never really considered much when I wasn’t chronically ill. That is one of the silver
linings of being ill, I suppose.
Lately, I’ve been ignoring my limits. Which has meant that,
despite all my good intentions and well laid plans, I’ve burnt myself out abit
and gotten into a mess. And this particular mess has been a partial blockage. I’ve
come out the other side realising that my current lifestyle needs some
alterations so that I can continue to do what I love but also do what I need to
do too. It is not something I feel fantastically happy about – admitting defeat
is something I hate doing – but! I know it will help me fulfil my working life
potential. I have realised too that making mistakes whilst living with an
ostomy – and mine is not even a year old yet – is part of this new life as an ostomate.
But being a good, proactive and resourceful patient has helped in more ways
lately, than ever before.
0 comments:
Post a Comment
No judgment, no hate, because it is already tough enough being a girl.