Showing posts with label testing. Show all posts
Showing posts with label testing. Show all posts

Monday, 6 June 2016

My Breast Cancer Scare

You might have noticed that I was pretty MIA on Safe Space last month, and if you follow me on social media then you’ll probably know why.

In May I had a breast cancer scare.

I knew that I wanted to write about this experience but I wasn’t sure what I wanted to write about exactly. It’s all still pretty raw for me emotionally and I don’t want to go into the ins and outs of what happened. I’m sure you can all imagine what it entailed: a lot of doctors and hospital appointments, a lot of tests, a lot of waiting for results and a lot of anxiety.

Thankfully a story about being diagnosed with breast cancer is not a story that I have to share with you today and I have now been given the all clear with no further tests required. So I suppose that what I want to talk about is how this experience has changed me and what it has taught me because it has changed me, significantly.

For the past year I’ve been working on battling my anxiety and fears with my therapist, this usually involves taking small but steady steps one after the other over a period of time. When I found an unusual change in my right breast it forced me to abandon the baby steps that I’d been working on and run up onto a whole other staircase right at the very top of the anxiety building. Me, the girl who struggles to leave the house alone, suddenly had to go through a very real and terrifying situation that most people would find hard to deal with never mind someone with severe anxiety. I definitely felt like I’d been chucked in at the deep end and I was petrified. I couldn’t sleep, I couldn’t eat, I couldn’t function. I spent most of May watching mind numbing daytime TV, seeing my counsellor and just trying to get from one doctors appointment to the next without breaking down, everything else went out of the window.

When I was given the final all clear, no further tests required, I was ecstatic. I’ve never experienced such pure relief and joy. Over the past month it felt like weight after weight was being piled on top of me and I was shaking and struggling to hold that weight, certain that the next weight added would be what made me crumble. Now I could finally put those weights down and it left me feeling strong. During this time I really got to know my own strength and just how much I can cope with so it suddenly became easier for me to pick up similar fears that carried the same weight and deal with them. I’ve since started to conquer some of my biggest fears like they’re a piece of cake.

When I was entertaining the very real possibility that I might have cancer the thought that kept running circles in my head over and over was but I haven’t even really started to live yet. I’ve spent so many years trying to protect myself from any harm coming my way by not leaving the house, carrying out OCD rituals and avoiding what my brain deems to be scary and unsafe places but in building a protective bubble around myself it didn’t keep something bad from reaching me but it did keep a whole lot of good things from touching my life.

Having this scare made me realise that the bubble I built around myself for protection hadn’t worked. I wasn’t immortal, I wasn’t immune from illness, and the safety precautions I have painstakingly taken for years hadn’t worked in keeping me safe. Danger had still found me, it had still worked its way into the bubble and in that moment the bubble popped. It was like being told that this miracle safety drug that I’d been taking was actually a placebo and with that knowledge the anxiety and depression came rushing back in waves.

After speaking to my counsellor I realise that at that moment when the bubble popped I had what they like to call “the breakthrough.” The reason why I was suddenly feeling my anxiety and depression so strongly again was because the usual unhealthy way I used to cope with it before like avoiding leaving the house and checking a switch was off a certain number of times wasn’t working anymore and so suddenly the anxiety and depression that I could usually contain and control this way was now flying around all over the place creating havoc in my brain.

My counsellor told me in our last session that now comes the hard part, now I have to learn to manage my mental illnesses in a healthy way and find new ways to cope now that the illusion that the bubble brought me has been broken, which is scary but also exciting. I had the realisation that I couldn’t protect myself from danger, that it’s actually out of my hands, that it doesn’t matter what I do to feel safe it actually doesn’t keep me safe and in knowing that there is fear but also a greater sense of freedom. Because if something as scary as cancer can find me in my own bubble then heck why not do what I want to do if I’m going to be in danger anyway? Why not go for a walk in the park? Or go shopping? Or try something new? If keeping myself safe is an impossibility then why not make my new priority doing what I want to do with my life so that next time I’m faced with my own mortality the first and overwhelming thought in my mind isn’t but I haven’t even really started to live yet because if this experience has taught me anything it’s that life is too damn short and I’ve already wasted so much time on what ifs? I’m one of the lucky ones and it is my duty to myself to make the most of the time that I have on this earth. To love deeply, to talk loudly, to live fully and to never let fear of the unknown hold me back again.

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I wanted to end this post by highlighting a brilliant campaign called #FeelitontheFirst started by young breast cancer survivor Nalie Agustin that encourages people to check their breasts for any changes on the first day of every month. This allows you to become really familiar with what your breasts look and feel like so that you will notice any unusual changes if they should occur. Breast cancer can happen to anyone of any age, any gender and any lifestyle and is highly treatable if caught early. There is a lot of false information about breast cancer on the internet so if you find a change stay off Google and talk to your GP, you will never be wasting anyone’s time.


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Monday, 28 March 2016

Being Clear About Getting a Smear

In the UK, once a woman turns 24 or 25, she is invited to go for a cervical screening test, or a 'smear' test. They then need to be tested every 3 years until they turn 50. My 24th birthday came and went, and my screening letter arrived on my doorstep. I promptly opened it, tossed it to one side, and forgot about it. 

Why, you might ask? Maybe it's down to the fact that I am notoriously bad at booking appointments; it took me 18 months after moving to actually register with a GP. But I think deep down I was also feeling what pretty much every woman feels when they receive the letter: apprehension. 

And I'm not really sure. I'm quite blasé about illnesses; I don't worry about catching diseases or developing conditions. I'm pretty laid back in life and it's just not something that I (thankfully) have anxieties about. 



And I knew the procedure might be a little embarrassing, but I've had several STI tests (better safe than sorry!) and from what I gather, they are pretty much the same. Yes it's an inconvenience, but it's over within minutes. 

Yet I joined the thousands of women who put off having their smear tests every year. It wasn't until I received my third reminder letter, and my friend (who I share the same birthday with) booked her's, that I figured that I should just go ahead and book mine.
Smear tests are performed at your GP surgery, and are generally done by a nurse. I worried about stuff that is ENTIRELY irrelevant. What do I wear? How much should I groom? Should I shower before? Or would that affect the results? 

All of this is completely irrelevant! If you want to be able to cover up quickly, I would recommend a skirt, as you can just whip it up for the action and then flop it back down again. But the nurse will give you as much time as you need to take clothes on and off, so just wear whatever is comfortable. I don't recommend fifty layers because you will probably end with something upside down/back to front. 

With regards to the procedure itself – look away now if you're particularly squeamish! – it's pretty straightforward. Once I had undressed from the waist down, I lay down on the couch. They may raise the bed as necessary, so don't be alarmed if you are two feet higher than when you started! It's to save the nurses having to convolute themselves over your nether regions. 

Next comes the part most people dread: the speculum. It's either plastic or metal, and is inserted inside the vagina to hold the walls open so that your cervix can be accessed easily. This may feel a little cold, and some people say a little painful, but I barely felt it at all. There is a slight pressure inside as they take the swab. It's quite hard to describe, but for me it was like a little poke, and just felt very deep? Like an 'oh, that's my cervix!' kind of response.



Bearing in mind the swabbing takes approximately 15-20 seconds, and the speculum 20 seconds to put in and out, the actual examination takes less than a minute. They will ask you some basic questions beforehand, and you can expect results within two weeks. 

The main feeling I came out with is 'why hadn't I done this sooner?'. It's a relatively pain-free experience, took 5-10 minutes of my time, and meant that I can be confident that at least one part of my body is healthy. For the same reason I get STI tested, it's just for peace of mind. And it's great to finally tick off my to-do list! 

If your sample has any cell abnormalities, it will be tested for human papilloma virus (HPV), and if this is positive, you will be asked to go for further testing, known as a colposcopy. There are over 100 different types of HPV, and only a few of these are linked to cancer. 

My results showed 'changes to some of the cells in my cervix'. There was evidence of HPV, but this does NOT necessarily mean I'll need treatment. If you get the same response, I would please urge you to not panic at this stage. If you have low grade changes, most cases do not lead to cancer. However, a colposcopy should confirm what will need to happen next. 

How did I feel about my results? A bit eye-roll worthy, to be honest! It's just my luck that this would happen. I'm glad I eventually went, because having something go undetected could be dangerous, so if I do need treatment, better sooner than later! At the same time, I know the second test is not a result of me delaying the smear, and it probably wouldn't have made a difference if I had been tested straight away. 

What I will say to anyone who has received the invitation letter... just go and have it done. I felt a huge relief once it was over, and it's such a simple procedure. You may not need one if you haven't been sexually active, so check with your GP to see whether you need one or not. 

My colposcopy is booked for next week, so wish me luck! It'll be interesting to have giant binoculars pointing at my vagina...

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