Changes, Welcomed Changes

I’ve always been known as someone who doesn’t do things by halves.

Some examples?

-          I have the most progressive disease my Gastroenterologist has seen.

-          In a three-month period, my colon disintegrated but I didn’t present with a flare up of IBD!

-          My GYN surgeon removed a tennis ball cyst off my ovary which should have been causing tons of problems, but wasn’t

-          When I got sick, I was really sick; without much indication.

See? Didn’t I tell you?

Things for me come all at once or not at all.

I am currently sat doing not much because I cleared my to-do list to have a couple days of down time. Why?

Well, in a couple weeks I start a new job. Almost 70 miles away from home. And this weekend, my OH and I go there to find my rental property for the first six months.

All the scary, big, life changing feels, right?

Thing is, I could have found a job closer to home. I could have found a job which would mean me and my OH could have lived together next year. I could have found a job that was just a job nothing more. And that would have been me, this time last year; pre-surgery, pre-ostomy. I would have settled for a job because it was money and I needed money. It was low risk, low responsibility and it was just a means to an end. I’ve felt like this about many jobs in the past; always thought it was safe to take a job I didn’t like because who would want anyone to work for them who was chronically ill, unable to show true commitment?

But it’s not me now.

The last six months I have felt incredibly well. I wasn’t expecting it and I admit, it was beginning to freak me out; I’ve never been that well with my Crohn’s in all the years I’ve had it so far, I hadn’t expected surgery to be so… life changing. So, by being so well, I’ve pushed myself. I’ve worked hard on my own blog, reached out to people and sought opportunities I would never have dreamed of before. Admittedly, I’ve had the free time to be flexible and explore these opportunities, and finally, it’s all paid off.

My job offer was 40% luck and chance and 60% recommendation and me, in all my gutsy glory.

I don’t mean to be big headed, I hope this does not come of like that, but jeez I still can’t believe it, all of this is happening and its happening to me.

So, in between all the stress of finding a place to live, moving to a new part of the country, starting a new job – it’s been 14 months since my last one, yikes! – I am incredibly proud of myself. I am internalising all of that so that on my first day I don’t bolt – panic and lose all confidence. And to anyone else, this is just a job and it’s not a big deal but it is to me. I have worked hard since surgery, whilst recovering, I’ll add, to figure out my plan; of what I hope to have my life be. It’s a solid picture now, instead of the blur it used to be. It’s filled with a house, my OH, some dogs and plenty of food. And it feels achievable for the first time in five years, since the diagnosis. Things finally feel stable, when I once felt so unsure about my life, myself and what I was actually doing. I don’t question things these days, my mellow attitude comes from – I hope – of years of learning to live with a chronic illness.

And maybe this will change if I get sick again – which is a possibility, a chance it could happen – but I am hopeful my ‘new’ attitude doesn’t falter if it does.

I hope this change, this welcomed change, is going to stick.

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Acceptance

 

Lately, people have been asking me how I’ve become so okay with how my life currently is. I think they mean to ask ‘how have you been able to accept your stoma so well?’ because it’s only been a little over six months since my operation. 

I think it’s down to three things, really:

1.       I have lived with a chronic illness for five years. I’ve had all that time to build up my own way to accept whatever circumstances have been thrown my way; both with my health and a result of my health. So, I learnt a while back to ‘roll with the punches’ and to ‘see the positive side’ – because there is always one, you just have to be willing to see and find it – through having had counselling sessions. From these, I found out a lot about myself but also discovered new methods to help me cope.

2.       At my first surgical consult in January 2016, my surgeon explained that my Right Hemicolectomy could result in a temporary stoma – about a 5% chance. I decided I had to get my head around that, so feeling okay about maybe having one and preparing myself for one, was helpful when I finally did get my ostomy; I just didn’t realise it would be so soon.

3.       I have a curious mind. I am fascinated by how the body works – more so now that I have an illness – so having my insides come outside of me, I think, is quite cool. And I just see it as another quirk of mine – I have a bag of poo on my belly!

In addition to that, my ability to see the funny side; being able to laugh and joke about it, just makes it more normal to me and everyone I interact with. I wouldn’t be without my support system of family, friends and medical professionals who have guided me through recovering from major surgery and living with an ostomy.

So, now that my acceptance is here to stay, what do I intend to do with it?

Well, I hope that by me being ‘okay’ with my ostomy, will make it okay for others to think it’s okay too. The raising of awareness; of letting people know that this is not a bad thing that has happened to me, it is something I have had a choice in -  something I am proud of having - is something I am happy to partake it. And so far, it’s led to some very cool and exciting opportunities and I have been able to connect with even become friends with some great people.

Part of raising ostomy awareness is to help non-ostomates is to see an ostomy as ‘normal’ and acceptable. It is not something for an ostomate to be ashamed of. And it certainly isn’t something to used as an insult or as a derogatory term. Ostomies come in lots of forms and for many reasons, to many different types of people. There should not be a judgement here.

Let’s break down the walls and start small.

If you are curious about an ostomy – my ostomy, let say – then ask. I am happy to answer questions and queries.

You can follow my adventures with a chronic illness – and my new life with an ostomy – at www.youngcrohns.co.uk

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Love is in The Air

February is the month of love thanks to Valentine’s day so here on Safe Space we wanted to take this theme and run with it but instead of the traditional love of another, we wanted to talk to you all about self-love. In this post you will see what self-love means to some of the team members, how hard it can be to love ourselves in a society that constantly points out your flaws and imperfections, and what actions we take when it comes to loving ourselves and putting our needs first.

Jess: I used to think that people who said that they loved themselves were lying. That’s such a sad statement to write, but it’s true. I was brought up in a society that encourages you to constantly want to change and tells you that you’re not good enough and if you dare to love yourself is quick to shut you down and tell you that you’re being big headed. As women we are taught to be humble and play down our achievements, that nobody likes a show off. Society constantly sends the message out to girls and women that loving yourself is not okay. So yes, growing up I found the idea of loving myself an impossible concept, so much so that I didn’t believe it when people told me that they felt that way about themselves and I find that incredibly sad.

This all changed for me last year when I started following women online who promoted self-love and body confidence whatever your shape or size. These women were bright, vibrant and from all walks of life. They all looked completely different but the one thing they had in common was that they radiated self-love and positive energy, not only for themselves, but for all women. I found their confidence beautiful and I realised that if they could love themselves then I could too. Something clicked for me and when I looked in the mirror I started to like what I saw. I’ve never felt so confident or sexy and yet nothing had changed except my own attitude towards my body. Other people noticed this change in me too and I started to receive so many compliments from the people around me.

Around the same time I also went into recovery for my mental illnesses and started doing things I never thought I would do. This gave me a huge surge of confidence in who I am as a person. It made me feel strong and capable and I gained a new level of self-respect that I’d never had before. This woman I was discovering was a badass and I liked her very much.

Over the past year I finally learned to love myself both inside and out, but like any relationship it’s not perfect. I still have days where I look in the mirror and don’t like what I see and there are still times where I doubt myself and think I’m not good enough but for the most part my attitude towards myself has completely changed. In learning to love myself I have also learned to take better care of myself, to be kind and to treat myself as I would a friend whether that is by giving myself a break when I’m not feeling well, knowing when to say no, or treating myself to a new lipstick. You’re the only person you’re with for your entire life and the relationship you have with yourself is the most important one of all. Loving yourself in a society that encourages you not to is a constant struggle but finding that inner love will give you an aura of confidence and self respect that you will carry with you for the rest of your life that no magazine or mean comment will ever be able to take away.

Louise:

I have a seven inch scar down the middle of my abdomen. It’s red and an ostomy bag sits on the right-hand side.

Scars are the map to my past.

My scars are also the battle wounds of my previous fights. Yep, fights. I’ve been a long-term battle with my body since September 2011. My invisible illness of Crohn’s Disease meant that I secret fought my body both physically and mentally. Most of the mental acceptance of having this invisible and chronic illness has been come from others being unable to see what is wrong with me; they can’t see how ill I am, they can’t feel my pain my guts have given me, they can’t understand how much I wish this wasn’t my life.

I still fight my body but now I am winning not only the physical battle but the mental one. It has taken five years, two big surgeries and multiple wounds to realise that my disease doesn’t mean I love myself any less. If anything, I have grown to appreciate my body and how I see my body because despite having something physical for people to identify my illness with – my ostomy bag and midline scar – I have grown to accept myself; scars and all.

People would consider my flaw to be the fact that I poop out of my abdomen now but I see that as my quirk. It isn’t a normal thing but it is by no means a rare thing either. So many people have ostomies and no one knows because they are concealed under clothing. I show my ostomy when I choose too; it is my little secret. I am proud of my secret and you are privileged if you have seen my ostomy bag. Don’t mistake my secret as a dirty little secret, I am supremely proud of my ostomy because it has changed my life and without it I would be still living a life of chronic pain, or possibly not even be here. I celebrate the fact that medicine has come this far to give me this in order to live a life I am proud of. I love my ostomy; it gives my life purpose. It gives me hope. I keeps me out of hospital. Its taught me that my body is a wonderful thing, despite its differences. I’ve accepted that it might look different, it might operate differently but it is still worthy of love. And I love it, for all that it is, and all it will be.

Lily: Learning to love and accept myself has been a long process that is still ongoing. For a long time, particularly growing up, I hated the way I looked. I hated that I was gangly and tall and I didn’t feel feminine, I hated that my hair was neither curly nor straight but this weird in between frizzy mess. I hated my spots and my braces and my nose. Honestly, I could go on.

Thankfully, a lot of that has changed, but it’s taken a long time. I try to embrace my height as much as possible, but there are still days I find difficult (trust me, clothes shopping when you’re a 6ft woman is not a fun or easy experience). I’m learning to love and embrace my natural hair for what it is despite society telling me all of the different products I could use to make it straighter and prettier and ‘more normal’ (don’t even get me started).

Growing up I can’t necessarily remember hating my personality but I think like many people I didn’t particularly like myself either. I’ve always just spoken without thinking and things have come out wrong. I don’t like a lot of the things a lot of people my age enjoy like drinking and clubbing – which is perfectly wonderful and valid if you do like those things, it’s just not for me. There was a period of time about two years ago when I hated myself for not being like other people my age – for being introverted, for having anxiety, for preferring a night in with pizza and Disney movies to ‘the sesh’ as it’s not referred to.

Over the past two years I’ve come to really start to accept that part of myself, and that it’s okay if I want to do things a bit differently to the rest of my peers. I love my interests and that sometimes I care maybe a bit too much. I know now that I can be a good listener and that people feel comfortable coming to me for advice and comfort and I love that about myself. It’s definitely a process that’s still ongoing, but I think I’m getting there.

Faye:

Only a few weeks back I wrote a post about how at the moment I am struggling to love my body. I keep looking in the mirror and not liking what I see. Cursing myself as my clothes feel tight and just do not seem to fit the way they used to. And of course, on top of that are all the connotations of what being bigger than people leads to and how it feels like I am taking up too much space - literally. However, today I wanted to talk a little bit about how despite not particularly loving my body right now, I do quite like myself. There are times, naturally when I hate my personality and I end up questioning everything I do and whether I am even a nice person or very good at what I do but more often than not, I love me.

This is something that has taken me a long time to do. For years I have struggled to love myself, did not feel that I was worthy of any love, let alone my own. But I have finally come to a place in my life where this has changed and I am so very happy about it because in my opinion, if you don’t love yourself then you will struggle a lot in life - as I did. I’m not entirely sure when or why I changed my mind about myself, but I did and I am glad for it. I love that I know who I am now. I love that I am stubborn, emotional and organised. I love that I am also messy, closed off and easy-going. Because these contradictions are what make me human. I love that I can be high as a kite just on air and that I can make people smile just by being me. I love my laugh and my weird quirks. These make me, me. Now I am not saying that loving myself is easy, there are times when I hate everything about me but it is my love of myself that keeps me alive and keeps me going and that is good enough for me. Plus, if I can’t love myself, who the hell else will?

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All The Single Ladies

Halfway through this year I found myself single. Not through my own choice I might add, but I was suddenly thrust into a bubble of uncertainty and complete confusion about what to do with myself now a whole part of my life had been shaken up. And it took a while before I began to settle into single life and remember why being single is actually quite brilliant. 

So often being single is seen as a negative thing which I’m learning couldn’t be further from the truth. I’ve not spent much of my adult life single; I was in a relationship until I was 18 and then started a new relationship when I was 21 so I haven’t really experienced being single as a ‘proper’ adult. (And by ‘proper adult’ I mean 21+) At first it felt like a burden and a horrible cross to bear, who wanted to be single and face the prospect of never finding someone ever again? Not me, that was for sure. However since then my view has changed dramatically and I couldn’t be less bothered by my singleton status.

I thought I’d compile a list of all the great things about being single to show that it isn’t all doom and gloom:

- You don’t have to be responsible for anyone but yourself
- You can do what you want, when you want
- You don’t have to worry about someone else’s wellbeing all the time
- You remember that you’re actually a pretty awesome human being on your own
- You can flirt to your hearts content
- You can starfish in bed all night long
- You don’t have to worry about arguments or disagreements over petty things
- You can listen to what you want and watch what you want without criticism/annoying someone else
- You fall in love with yourself all over again
- You don’t have to rely on someone else to please you in the bedroom
- You don’t have to spend money on someone else
- You can be the best version of you

I guess some of these make relationships sound like a negative thing and that couldn’t be further from the truth, but there is this assumption that relationships are the best thing in the world and if you don’t find the right person and marry them then you’ve somehow failed. WRONG. As long as YOU are happy then you can be whoever you want to be and be with whoever you want to be with, if that’s anyone at all.

Right now I feel such a freedom and happiness being single and I can’t imagine getting into a relationship again any time soon (never say never etc) as right now I feel so balanced and happy with how my life is. I’m enjoying having the freedom to find myself again and fall in love with myself both emotionally and physically. It’s so important to get to a stage where you love yourself because if you don’t then you run the risk of getting into a relationship where you accept less than you deserve and you should never sell yourself short when it comes to love. Everyone deserves someone who loves every single atom of them; who loves them with a ferocity that can’t be matched and would do anything for them.

I’m excited to move forward with my life as a single woman and I can’t wait to see what the rest of my life brings! 

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Life Turns On A Dime

There’s a saying: ‘life can turn on a dime’.

And in the past few weeks I’ve never understood this phrase more. I got dumped. I suddenly fell in love with exercise. My diet is literally the sort of diet I used to think was grim as hell. I am pushing myself to deal with my anxiety. From where I was a month ago my life is completely different in so many ways. And it shocks me how fast we can change the direction of our lives, whether it’s through our own choice or someone else’s.

And it got me thinking. If you could change anything about your life what would it be? Would you be healthier? Would you be braver? What would you change? What’s something you desperately want?

And then think about this…

What is it that is stopping you from doing it?

Yourself?

Others?

Society?

Now think again, if you take away the boundaries that YOU set for yourself. The boundaries that people who know you set around you. The boundaries that society sets…

NOW what’s stopping you?

I’mma guess nothing.

Because the only reasons we stop ourselves from doing the things we REALLY want to do is because we allow these boundaries to act as immovable walls.

NO.

PUSH THROUGH THEM.

Want to be healthier? Teach yourself self-love, self-compassion and treat your body like the temple it fucking is. People telling you that you’ll fail? You’re not good at sticking to things? Tell them to get out and go and sort their own problems out before they start passing judgement on you. Society telling you you’ll never be as hot as all the sexy women of the world? Even if you’re healthy you’ll never be like them? SCREW THAT.

DON’T LET ANYTHING STAND IN YOUR WAY.

So often we think we can’t do things because we tell ourselves we can’t and then people we know and society help validate those feelings of inadequacy. And then we think ‘I can’t do it so I’m not going to even try.’

For YEARS I’ve thought I’d NEVER be able to lose weight and that I’d just have to accept I’d always be fat. And people just sort of perpetuated those feelings…’you’re not very good at sticking to healthy eating’ etc. But I got an exercise bike, some weights and started to eat less processed food and suddenly I realise that I CAN lose weight. I CAN get fitter, stronger, healthier. And that’s because I smashed through the wall. When I was using my exercise bike, looking like a fat whale, sweat dripping off me and a red face I was like ‘this is gonna be pointless because I’ll never be sexy or thin or strong’ and then I was like ‘NO WAIT. I WILL BE. I CAN BE.’ And I kept pedaling and that was my metaphorical wall that I knocked down. I realised that the only thing that EVER stopped me from achieving what I wanted was ME. And my fear of being laughed at or failing or never getting there.

But you know, isn’t it worth trying? Isn’t it worth failing than never trying at all? Isn’t it worth taking a hammer to the wall? You might not get through to the other side first time but every time you try you make those bricks looser and soon you’ll find you get through that wall.

Make a decision, let life change on a dime for you. Do something you never thought you could.

You’ll surprise yourself. 

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