Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Friday, 3 February 2017

Being Ill And a Hypochondriac

I am not good at being ill. I'm one of those annoying people who complains about being ill and how run down I feel and how I just want to go out and do all the things and not sit in my bed doing nothing. I more or less get cabin fever within the first day of being ill. Unfortunately all of this means that I am also very good at ignoring that I'm ill. It means I will still go places and do things when my body is practically screaming at me to rest because I hate being ill.

But aside from the actual illness being a pain and a nuisance, the other reason I hate being ill is because I am a hypochondriac. In case you haven't heard of this term before, it means that I am incredibly anxious about being ill. Jess wrote a brilliant post about it here on Safe Space as well which you can find here and which had me nodding the entire way through as well. 

What being a hypochondriac as a healthy person means is that every ailment I get - headache, muscle ache, itchy eye, etc - is over-analysed. It means that I am dying. I have an incurable illness and I will die a long slow and painful death. The problem is that as with every other anxious thought, I know it's not rational to think this way but I also cannot help it. What this means, of course, is I end up with other symptoms because of the anxiety flowing through my body.

Now add in an actual illness and you can see how everything might just be a little bit worse. For me an every day common cold is the flu and I am going to die. A stomach bug is the worst stomach bug and I am going to die. So on and so forth. It means that I am constantly anxious when I'm ill. Constantly alert and constantly wishing to be better so I can confirm that I am in fact not actually about to die.

But where this all gets contradicted in my brain is that I also hate going to the doctors. So while there is a theory that hypochondriacs are always at the doctors asking for advice about certain ailments, this is not true for me. In my head, going to the doctors means that they will actually insist that I am correct and I do have an illness which is killing me. Not rational, of course but that's how my brain works.

The reason I'm writing this post today is because I have had a cough. It is a cough that I've had for over three weeks and it is a cough that came with no other symptoms. I have thus been worrying myself silly about it. Telling myself I have lung cancer and am on my last legs. And so on and so forth. All the while more or less refusing to go to the doctors about it. Also because of the "only if it lasts longer than three weeks" advice we're all given.

Turns out, when I finally went to the doctors, it was confirmed that I have Bronchitis. So I'm not going to die - huzzah! - but if I don't kick it soon, I may develop pneumonia so with that thought weighing heavy in my mind, I've been taking antibiotics for the last few days and really hope that I might soon be back to my normal health. Keep your fingers crossed for me?


Friday, 25 November 2016

Clean Freak... Or Maybe Not.

One of the things that really grates on my nerves is when people trivalise and normalize OCD. It has now become an acronym that everyone has heard of and throws around as though it isn't a life-crippling illness that can change someone's well-being for the rest of their lives. Sentences about how people need things to be a certain way and therefore they are "a little OCD", are so incredibly harmful as it diminishes the struggle that everyone who actually has OCD faces every single day. OCD is not just about wanting things to occur in a certain way. It is about not being able to function if it isn't a certain way.

Another common misconception about people who have OCD is that we're all clean freaks. And that if you clean your house a LOT, you are obviously OCD. Seriously? I cannot even find the words to describe how much this one strikes me to my core. It is because of this view of OCD that I never believed I had the illness because I am a messy person. Lazy, is often the word used to describe my attitude towards my room and cleaning it. Thus I was pretty certain that I couldn't possibly have OCD because of this. OCD's were perfectionists in my head because that is how everyone portrays them.

And it is wrong.

And damaging.

I cannot even imagine what my life might have been like if I'd been diagnosed earlier. If I'd understood what OCD actually was then maybe I could have gotten help sooner and I wouldn't be struggling so much today.

But the media and society did not help me with my diagnosis. And I am so worried about everyone else who probably needs help but just does not understand because their OCD isn't what everyone says OCD is.

So in this post I also want to break down this misconception about cleanliness. I want to try and explain how I view cleanliness and how much I struggle because of it.

If you've been following this blog for a while then you will know that I have difficulties with food. That I have difficulties with my hands and constantly have to clean them with hand sanitizer or hand soap to deal with life. It was actually my issue with the cleanliness of hands that finally had me going to the doctors to find out that I did have OCD but it is actually only one of my issues, of which I have now realised I have many.

So, I'm sure you think that because I wash my hands a lot, that I am a clean freak.

But you're wrong.

And the main reason for this is that I am actually afraid of cleaning products.

I'm just going to let that soak into your mind for a moment.

One of my fears is that the cleaning products I use to clean the germs, that I am terrified of, will actually cause me to get ill and die.

Not a rational thought, right?

And yet, have you ever looked at the back of a bottle of cleaning spray? Have you read the warnings? Don't let it touch your skin. Wash your hands immediately. If you drink it, go to the hospital straight away.

All warnings which my brain have taken and blown out of proportion.

Because that is what my brain does best.

Last week I was sick on the carpet in my flat. Naturally I needed to clean it up. Had to clean it up because it was gross and I felt dirty and I wanted it gone. But to clean it up, I first had to buy disinfectant - because I didn't even have any - and then I had to wear three pairs of gloves to wash the carpet with and then I had to shower straight away. And, even though it is now clean, I am still having trouble walking on that patch of carpet. So much so that I have had to put a rug down so that I am not walking on that bit of carpet. The problem is that I am still afraid that the disinfectant will kill me and that it hasn't worked in cleaning the germs that the sick left behind.

And this is just one example of my cleaning product issues. Don't even get me started on bins.

So no, OCD is not just about being a clean freak. OCD affects everyone differently and we  really need to stop normalizing and trivializing it because being clean is actually a very normal thing. Cleaning because you have OCD is not.

So if you hear it happening around you, a joke or a comment or something that makes OCD seem like an easy thing to deal with, for my sake and for the sake of people you may not even realise have the illness, could you try and correct them? Explain that unless they can't function until they clean or tidy, then they do not have OCD and need to stop using the acronym as a throwaway comment.

Please.


Friday, 12 August 2016

Finding The Balance

One of the things that is often mentioned when you talk about stress is that you need to find your work-life balance. You shouldn't be a work-a-holic because it impacts your social life. But you mustn't be too social as it'll impact your working life. You have to find the perfect balance to sort out your life and make you feel less stressed and more at peace with the world.

And I do agree.

To an extent.

As someone who is particularly struggling with work at the moment for many, many reasons, finding the work-life balance has been incredibly difficult for me. I want to go out and be social and have fun but I also know that work will stress me out and tire me out and actually all I'll really want to do is be on my own and sleep the evening away. And thus, if I let it, my life could easily become work, sleep, work, sleep and nothing else. Not exactly a great work-life balance, eh?

So, to counter this issue, I plan. I plan trips away. I plan evenings out. I plan trips to the cinema and meet ups with friends and day plans and weekend plans. I aim to keep my life from just being about work and sleep. I aim to see friends and family, to use these moments to keep my brain (as) sane as it can be. Because if I didn't then surely I would crumble. I would be too stressed. I'd overwork my brain and I'd have nothing to keep my mood from deflating back into depression.

The problem that I currently have with my life balance is that I am doing it all wrong for my personal circumstances. If you remember, I spoke in this post about how I'm currently chronically tired. I get tired more often, my muscles scream at me consistently and I am basically just struggling to function as a normal human being. Add in a healthy dose of anxiety and you might just see why my life balance needs to be more than just work and social outings. 

But I seem to be unable to grasp this fact.

It is almost like my brain is in a complete and utter state of denial over my current predicament. No, it tells me, you don't need that day to rest, you'll be fine. Make plans for that day or that evening and enjoy yourself. You can rest when you're dead.

And so I listen. And I plan. And I plan. And I plan.

And then, because my body isn't this amazing perfect shell, I usually have to cancel. A lot. And every single time I do, I feel guilty. I promised that I would be there. I'm letting someone down because my brain and body are not co-operating. And then I work myself up so that essentially I can't relax and give my body the rest it so badly needs in the first place.

So from here on in, I want to continue to strive to plan but now, I also need to plan rest days and rest evenings. I need to plan the time that I'm going to switch off from the world and just let my brain and my body re-cooperate. I need to before I ruin my body any further.

And then maybe, just maybe, I can find my life balance.


Monday, 6 June 2016

My Breast Cancer Scare

You might have noticed that I was pretty MIA on Safe Space last month, and if you follow me on social media then you’ll probably know why.

In May I had a breast cancer scare.

I knew that I wanted to write about this experience but I wasn’t sure what I wanted to write about exactly. It’s all still pretty raw for me emotionally and I don’t want to go into the ins and outs of what happened. I’m sure you can all imagine what it entailed: a lot of doctors and hospital appointments, a lot of tests, a lot of waiting for results and a lot of anxiety.

Thankfully a story about being diagnosed with breast cancer is not a story that I have to share with you today and I have now been given the all clear with no further tests required. So I suppose that what I want to talk about is how this experience has changed me and what it has taught me because it has changed me, significantly.

For the past year I’ve been working on battling my anxiety and fears with my therapist, this usually involves taking small but steady steps one after the other over a period of time. When I found an unusual change in my right breast it forced me to abandon the baby steps that I’d been working on and run up onto a whole other staircase right at the very top of the anxiety building. Me, the girl who struggles to leave the house alone, suddenly had to go through a very real and terrifying situation that most people would find hard to deal with never mind someone with severe anxiety. I definitely felt like I’d been chucked in at the deep end and I was petrified. I couldn’t sleep, I couldn’t eat, I couldn’t function. I spent most of May watching mind numbing daytime TV, seeing my counsellor and just trying to get from one doctors appointment to the next without breaking down, everything else went out of the window.

When I was given the final all clear, no further tests required, I was ecstatic. I’ve never experienced such pure relief and joy. Over the past month it felt like weight after weight was being piled on top of me and I was shaking and struggling to hold that weight, certain that the next weight added would be what made me crumble. Now I could finally put those weights down and it left me feeling strong. During this time I really got to know my own strength and just how much I can cope with so it suddenly became easier for me to pick up similar fears that carried the same weight and deal with them. I’ve since started to conquer some of my biggest fears like they’re a piece of cake.

When I was entertaining the very real possibility that I might have cancer the thought that kept running circles in my head over and over was but I haven’t even really started to live yet. I’ve spent so many years trying to protect myself from any harm coming my way by not leaving the house, carrying out OCD rituals and avoiding what my brain deems to be scary and unsafe places but in building a protective bubble around myself it didn’t keep something bad from reaching me but it did keep a whole lot of good things from touching my life.

Having this scare made me realise that the bubble I built around myself for protection hadn’t worked. I wasn’t immortal, I wasn’t immune from illness, and the safety precautions I have painstakingly taken for years hadn’t worked in keeping me safe. Danger had still found me, it had still worked its way into the bubble and in that moment the bubble popped. It was like being told that this miracle safety drug that I’d been taking was actually a placebo and with that knowledge the anxiety and depression came rushing back in waves.

After speaking to my counsellor I realise that at that moment when the bubble popped I had what they like to call “the breakthrough.” The reason why I was suddenly feeling my anxiety and depression so strongly again was because the usual unhealthy way I used to cope with it before like avoiding leaving the house and checking a switch was off a certain number of times wasn’t working anymore and so suddenly the anxiety and depression that I could usually contain and control this way was now flying around all over the place creating havoc in my brain.

My counsellor told me in our last session that now comes the hard part, now I have to learn to manage my mental illnesses in a healthy way and find new ways to cope now that the illusion that the bubble brought me has been broken, which is scary but also exciting. I had the realisation that I couldn’t protect myself from danger, that it’s actually out of my hands, that it doesn’t matter what I do to feel safe it actually doesn’t keep me safe and in knowing that there is fear but also a greater sense of freedom. Because if something as scary as cancer can find me in my own bubble then heck why not do what I want to do if I’m going to be in danger anyway? Why not go for a walk in the park? Or go shopping? Or try something new? If keeping myself safe is an impossibility then why not make my new priority doing what I want to do with my life so that next time I’m faced with my own mortality the first and overwhelming thought in my mind isn’t but I haven’t even really started to live yet because if this experience has taught me anything it’s that life is too damn short and I’ve already wasted so much time on what ifs? I’m one of the lucky ones and it is my duty to myself to make the most of the time that I have on this earth. To love deeply, to talk loudly, to live fully and to never let fear of the unknown hold me back again.

*

I wanted to end this post by highlighting a brilliant campaign called #FeelitontheFirst started by young breast cancer survivor Nalie Agustin that encourages people to check their breasts for any changes on the first day of every month. This allows you to become really familiar with what your breasts look and feel like so that you will notice any unusual changes if they should occur. Breast cancer can happen to anyone of any age, any gender and any lifestyle and is highly treatable if caught early. There is a lot of false information about breast cancer on the internet so if you find a change stay off Google and talk to your GP, you will never be wasting anyone’s time.


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Sunday, 8 May 2016

Life Changing Medication

So the topic of antidepressants has been approached twice on this blog. The first time was by Jess in this post about her mental health treatment and the second time was just last Sunday by Laura in this post about how she loves her antidepressants. So today I wanted to write a response post to that.

I’ve just recently been prescribed antidepressants. I’m actually on the same kind as both Laura and Jess, Citalopram. Before being prescribed antidepressants, I was actually incredibly anti antidepressants. Not in general. But just for myself. In some stupid way, my brain told me that having to take medication to treat my anxiety was like losing. It meant that I couldn’t control my mental health myself, and my anxieties stem from having a lack of control so it was a really difficult thing for me to deal with.

Before being prescribed antidepressants, I did CBT, Cognitive Behavioural Therapy. This was just under a year ago and it did help. But it also didn’t. It meant that I knew why I was anxious, it meant I could determine when I was having an anxiety attack but I still really struggled to get past it. I then developed habits to help me control the anxiety. Habits such as washing my hands, which has now turned into routine and has become progressively worse as time has gone on.

Then I went to a new doctor for a completely different reason and it was decided that I should try antidepressants to help control my anxiety. I stared at the doctor with a wave of anxiety running through me. Without medication I could control certain aspects of my anxiety. I could walk away from someone ill, I could wash my hands before eating, I could choose not to eat or drink something. But in taking medication, I feared that I would lose that control. That the antidepressants would take away the anxiety and the control and it would be hard to deal with.

Of course, this was also my anxiety talking to me. My anxiety telling me to be afraid of the unknown and I had no way of knowing what the Citalopram was going to do to me. The doctor warned me that the first few days would likely cause me to feel more anxious. This only made me more anxious about taking the pills so I had to wait until I had a few days off work to take them.

The week before that was to happen, I had no control over my anxiety. I knew why I was anxious but instead my brain was telling me I was anxious about other things and I was just crippled by it. Which, in a way was a really good thing because I suddenly wanted the pills. I wanted them to stop me from feeling this way, I wanted them to help make me better. Turns out I was actually fine for the first three days on the pills, but on the fourth and fifth day I had crippling anxiety again. Fortunately I was still off work. And that was the last time I’ve felt that anxious. And that was about six weeks ago.

And I cannot tell you how amazing that is.

Before taking the meds, I was overrun with anxiety and it has only been since taking the meds that I’ve realised just how much my anxiety was overruling my life. It was winning and I didn’t even know it.

I have now had my medication increased from 10mg to 20mg a day because while the meds are helping, I think there is still more that can be done and I’m looking forward to seeing if I’m right. Of course, I also had some anxiety about upping my dose but there was no need for that.

But what I really wanted to end this post with is that while I was worried, fearful and vehemently against antidepressants a year ago, I am now incredibly grateful for them and feel that it is likely I will be using this medication to help me for the rest of my life. Taking antidepressants doesn’t make me weak, it is treating an illness. Just as a diabetic has to be on insulin or someone with chronic pain has to be on painkillers, being on antidepressants is just a medicine that is treating an illness and it shouldn’t be looked upon in any other way. Because, at the end of the day, mental health is an illness. If you broke your leg and someone looked down on you for wearing a cast, it would be completely immoral and wrong. And that is how I feel about antidepressants too.

And if you are in the situation I was, worried about taking the step to antidepressants, please try not to worry but also talk to someone. Someone you know, a doctor, or even just someone you know who is also on antidepressants, talking to Jess before starting my meds was incredibly helpful. Also, please remember that while one antidepressant helps one person, it may not help you but don’t give up, there are many different antidepressants out there as well as many other treatment options. It is your body, do what works best for you. So don’t suffer in silence. Get the help you may need. Your mental health is just as important as your physical health.


Saturday, 23 April 2016

Guest Post: The Rag Doll Disease by Hayley Steed

It was in my second year of university I started noticing my body struggling. The first thing was that I couldn’t use a straw, my mouth just wouldn’t close around it but I didn’t think it was a big deal. Then it was paralysis of my face – I’d be doing my makeup and I just couldn’t move my forehead or make my lips meet. It got worse when my speech started to slur and I began to choke on my food. I went to my university doctor about 5 times in 3 months, asking for help to be told it was stress, anxiety, migranes etc. It wasn’t until I went home to my local surgery that someone realised something was wrong. I was referred to a neurologist but the waiting list was 2 months – in that time I dropped to 6 stone from not being able to eat and I have vivid memories of having to leave restaurants with my boyfriend from everyone staring at me whilst I choked, to physically putting my fingers down my throat and picking out food I was choking on all whilst holding my breath.

My neurologist, Dr A as we like to call him, sent me for MRIs and CAT scans immediately before I was diagnosed with Myasthenia Gravis, nicknamed the Rag Doll disease. It’s an auto immune illness meaning severe muscle weakness. Essentially my body’s immune system attacks itself and sends antibodies to kill the messages from my brain to my muscles, so they just don’t receive the message and don’t move. That’s anything from my eyes drooping, to not being able to smile, to my swallowing muscles failing, to my lungs struggling. Dr A wanted to admit me but only let me go home as my Mum is a registered nurse. He told me to cancel mine and my boyfriend’s first holiday together which was just 3 weeks later, and cancel the trip to America my family had planned for several months later in the year, which was when I knew how serious it was. One of the hardest parts still was sitting outside that hospital and ringing my boyfriend to tell him I was ill.

I started on medication and in December 2013 at the age of 20 I had a transsternal thymectomy (they cut open my chest and took out my thymus gland which had a tumour.) I was his youngest ever patient and they told me it had 1/3 chance of making me slightly better, but not curing, 1/3 chance I’d be exactly the same and 1/3 chance it’d make me worse. It’s such a rare disease, they know so little about it. They don’t know what causes it, or how to really fix it. Either way I’d have the scar which runs the length of my breastbone and three ‘bullet’ hole scars underneath from where they fed drains into my lungs, which they took out when I was awake two days later. The only thing I’m going to tell you about that operation is that because my illness is all about muscle weakness, they couldn’t let me have any painkillers before I woke up. Usually they’ve already hooked you up to a morphine drip so you wake up with painkillers inside you – I didn’t have that in case it meant I didn’t wake up. I woke up feeling the full effects of the operation, screaming.


A couple of months before my 21st birthday they found a blood clot in my leg so I was on more treatment for that, meaning I was not allowed to drink for my 21st. I nearly had to cancel my birthday trip to Rome but I pretty much told them that wasn’t happening unless I could die doing so. I went. I’ve had two relapses, one when my eye closed for about 2 months, I’ve no idea why. I had to cancel all my work experience and just stay at home for that time. The other was last summer. I had a week where I kept waking up in the night feeling very phlegmy, to the point I couldn’t lay on my back because I felt like I couldn’t breathe. Then one morning I woke up and I couldn’t breathe standing up. I went to A&E, was met by ICU and strapped up to IVIG, a drug which essentially restarts your immune system. I had that over a course of 5 days which left me exhausted but it worked. That’s the only time I’ve come close to dying from it. (I had to cancel another holiday me and my boyfriend were supposed to be going on).

Something that came alongside the physical illness, was the anxiety. It’s better now, but for the first couple of years of diagnosis, I just wouldn’t go out. I was terrified it would make me more ill, or if I went for a meal, I would choke and either everyone would stare or I’d die. I didn’t like people seeing me when they knew I was ill because I thought they’d be looking for signs of it and I didn’t want to see anyone who didn’t know I was ill and have to explain why I couldn’t speak properly all of a sudden. Now, even though most people know I’m ill and I rarely choke at meals, I still get panicky when I’m going to events or meeting an author that my speech or face will just drop and they’ll wonder why. It’s a vicious cycle because the anxiety and stress makes my symptoms worse. Sometimes I try to joke about it so if I’m with my friends for a special occasion I always take my pills and say ‘if we’re taking photos, let’s do it now whilst my face works’. My worst bout was after my second relapse – I’d wake up every morning in a hot sweat, panicking in fear of waking up and not being able to breathe again like before.

My friends now tell me how snappy I was after being diagnosed and I was – I was angry. I was angry at the hand I’d been dealt, angry that I wasn’t like them anymore, that I couldn’t be ‘normal’ and angry that none of them seemed to think it was a big deal. An illness like mine, one which can’t be cured, brings a lot of frustration with it. It dictates every moment of my life – I decided I still wanted to work, which I do, and to live my life, which I do. But if I have an event in the evening after work, it will tire me out for the next few days. I can’t go to a different bookish event each night like I wish I could, I have to carefully plan. I can’t go to bed late, because if I’m tired, my muscles will be so much weaker. Numerous times I’ll be mid-way up a flight of stairs and my legs will give way – I just have to sit and let everyone walk by me until I’ve rested enough to go again. Most of the day I can’t smile, because my cheeks aren’t strong enough. I frequently look liked I’m mid-stroke and my medication heavily increases my risk of cancer. Rest is the biggest word in my life and it’s so frustrating, as a 20-23 year old to be told you can’t when you have always been able to and that’s always what I’ve struggled with most. If someone who knew me in my pre-illness years saw me now they’d be shocked. I used to love going out, I loved drinking and clubbing, I was loud and brash. I’m still quite brash, but if I go out, which is rare, I don’t drink because it’s a depressant and makes my muscles weaker. Even without alcohol, I can’t do stuff every day like ‘normal’ people can, I always have to consider what will tire me out, what will be too much first. It’s constant.

My scar then and now
Most importantly I think we need to stop putting illnesses on a scale. I had so many comments after being diagnosed like ‘at least it isn’t cancer’ or ‘at least it isn’t a brain tumour’ and yes, I’m so thankful I haven’t had to go through either, but does that make mine any less valid or difficult to live with? My own friends thought my illness wasn’t a big deal, until they nearly saw me die from it. But people can die from depression, from cancer, from Crohn’s, from epilepsy, from anxiety. So many people have a story like mine, of struggle and pain and difficulty. Mental and physical health don’t need to be measured or met with judgment of how bad they are.

This has probably been a quite depressive post so I’m going to list some good bits:
• It’s been nearly 3 years since I was diagnosed and I’ve gone from 40 pills a day to 8. I’m stable and have no signs of relapsing anytime soon *fingers crossed*.
• This was all going on in my 2nd and 3rd year of uni. I’d get extra time to finish my work after my operation and blood clot in 3rd year, and I got a First. I’m damn proud of that.
• I’ve been on several fantastic holidays which I haven’t had to cancel including driving the coast of California with my family and Rome for my 21st birthday.
• My incredible boyfriend has been with me since day 1 and has stayed throughout the most difficult times, even when I was freaking out about my ‘ugly’ scar.
• I’ve never been so close to my family – I had to call my Mum at 3am from my bed after coming home from the op to come and spoon feed me morphine because it hurt too much to move. After an experience like ours, you value everything so much more and we’re pretty much best friends. • I’m really happy – I got a job in publishing and my illness is settled enough to live with. I’ve got used to my life being toned down.
• Since my op I have skydived and abseiled to raise money for our charity – Myaware. This year I’m taking part in an attempt to beat a world record of skydivers and my Mum is jumping with me. If you want to sponsor me you can find my page at www.justgiving.com/HayleySteed3

For more from Hayley follow her

Monday, 28 March 2016

Being Clear About Getting a Smear

In the UK, once a woman turns 24 or 25, she is invited to go for a cervical screening test, or a 'smear' test. They then need to be tested every 3 years until they turn 50. My 24th birthday came and went, and my screening letter arrived on my doorstep. I promptly opened it, tossed it to one side, and forgot about it. 

Why, you might ask? Maybe it's down to the fact that I am notoriously bad at booking appointments; it took me 18 months after moving to actually register with a GP. But I think deep down I was also feeling what pretty much every woman feels when they receive the letter: apprehension. 

And I'm not really sure. I'm quite blasé about illnesses; I don't worry about catching diseases or developing conditions. I'm pretty laid back in life and it's just not something that I (thankfully) have anxieties about. 



And I knew the procedure might be a little embarrassing, but I've had several STI tests (better safe than sorry!) and from what I gather, they are pretty much the same. Yes it's an inconvenience, but it's over within minutes. 

Yet I joined the thousands of women who put off having their smear tests every year. It wasn't until I received my third reminder letter, and my friend (who I share the same birthday with) booked her's, that I figured that I should just go ahead and book mine.
Smear tests are performed at your GP surgery, and are generally done by a nurse. I worried about stuff that is ENTIRELY irrelevant. What do I wear? How much should I groom? Should I shower before? Or would that affect the results? 

All of this is completely irrelevant! If you want to be able to cover up quickly, I would recommend a skirt, as you can just whip it up for the action and then flop it back down again. But the nurse will give you as much time as you need to take clothes on and off, so just wear whatever is comfortable. I don't recommend fifty layers because you will probably end with something upside down/back to front. 

With regards to the procedure itself – look away now if you're particularly squeamish! – it's pretty straightforward. Once I had undressed from the waist down, I lay down on the couch. They may raise the bed as necessary, so don't be alarmed if you are two feet higher than when you started! It's to save the nurses having to convolute themselves over your nether regions. 

Next comes the part most people dread: the speculum. It's either plastic or metal, and is inserted inside the vagina to hold the walls open so that your cervix can be accessed easily. This may feel a little cold, and some people say a little painful, but I barely felt it at all. There is a slight pressure inside as they take the swab. It's quite hard to describe, but for me it was like a little poke, and just felt very deep? Like an 'oh, that's my cervix!' kind of response.



Bearing in mind the swabbing takes approximately 15-20 seconds, and the speculum 20 seconds to put in and out, the actual examination takes less than a minute. They will ask you some basic questions beforehand, and you can expect results within two weeks. 

The main feeling I came out with is 'why hadn't I done this sooner?'. It's a relatively pain-free experience, took 5-10 minutes of my time, and meant that I can be confident that at least one part of my body is healthy. For the same reason I get STI tested, it's just for peace of mind. And it's great to finally tick off my to-do list! 

If your sample has any cell abnormalities, it will be tested for human papilloma virus (HPV), and if this is positive, you will be asked to go for further testing, known as a colposcopy. There are over 100 different types of HPV, and only a few of these are linked to cancer. 

My results showed 'changes to some of the cells in my cervix'. There was evidence of HPV, but this does NOT necessarily mean I'll need treatment. If you get the same response, I would please urge you to not panic at this stage. If you have low grade changes, most cases do not lead to cancer. However, a colposcopy should confirm what will need to happen next. 

How did I feel about my results? A bit eye-roll worthy, to be honest! It's just my luck that this would happen. I'm glad I eventually went, because having something go undetected could be dangerous, so if I do need treatment, better sooner than later! At the same time, I know the second test is not a result of me delaying the smear, and it probably wouldn't have made a difference if I had been tested straight away. 

What I will say to anyone who has received the invitation letter... just go and have it done. I felt a huge relief once it was over, and it's such a simple procedure. You may not need one if you haven't been sexually active, so check with your GP to see whether you need one or not. 

My colposcopy is booked for next week, so wish me luck! It'll be interesting to have giant binoculars pointing at my vagina...

 photo safe space bio_zps8jlgrcn3.png

Monday, 14 March 2016

Hi, I’m Jess and I’m a Hypochondriac

Admitting to you that I’m a hypochondriac is a hard thing for me to do.

When I talk about my anxiety, I’m fine.

OCD? Not a problem. 

Depression? Sure thing.

But it’s hard for me to sit here and fess up to being a hypochondriac and that’s because being a hypochondriac carries a bad rep.

Over the years I’ve been called a “drama queen” and an “attention seeker” by my nearest and dearest. I’ve been told to “get a grip” and that I need to “stop worrying about nothing.” I think it’s hard for me to write this post because hypochondria is an anxiety disorder that’s hardly ever spoken about and therefore has a long way to go in fighting the stigma surrounding mental illness that we’re just starting to break.

In contrast to what has been said to me, my hypochondria is something that I live very quietly with, much more so than I live with my other mental health problems. Unlike common perceptions regarding hypochondria I rarely go to the doctor with my worries and I hardly ever discuss my fears with anyone for fear of being called silly.

For me, living with hypochondria is losing a whole night to googling symptoms and reading about various illnesses online spending hours trying to self-diagnose. It’s lying awake terrified that I’m ill or dying. It’s having intrusive thoughts about all of the big scary illnesses out there and the chances of me one day having them. It’s about worrying that even getting help for these illnesses, like having surgery, carry a risk of death. Truthfully, having hypochondria is terrifying and something that I often sit with alone.

In my experience, when people think of death they see it as a far off thing that won’t happen to them, or at the very least is something that they won’t have to face for a long time. I’m the complete opposite. I’m very aware that death is a part of life and that one day I will die and so will everybody that I’ve ever cared about. I know that death can sweep in and happen unexpectedly when you’re not looking and so I’ve made death my personal enemy.

I try as hard as I can to fortify myself and those I love from death by being a hypochondriac, by worrying and thinking of the worst possibility so that I can act quickly. I’m on constant high alert for the grim reaper knocking at my door.

There are so many health warnings these days, everywhere you look from posters to TV adverts. Now I’m not saying that’s a bad thing, I’m sure these advertisements save lives. But when you’re a hypochondriac being reminded that 1 of 2 people in the UK will be diagnosed with some form of cancer during their lifetime is not helpful. I look at those odds and I look around at the people I love and a wave of paralysing fear washes over me.

Every. Single. Freaking. Time.

And what’s worse is that I know that dying is inevitable and that for all of my worry and trying to protect myself and those I love against it ultimately there’s nothing I can do to stop it when it does finally decide to arrive.

Because as well as worrying about my own health I also am a hypochondriac when it comes to the people I love. My family get so annoyed with me when they’re ill. If they have an illness for longer than two weeks I’m certain that they’re going to die. I will nag at them to see a doctor and spend countless nights until the illness has passed crying myself to sleep and having panic attacks because I’m certain that something is seriously wrong with them.

In society hypochondria is a mental health condition that is still very much seen as a joke. It’s perceived as self-indulgent, dramatic and pathetic but in reality it is a terrifying condition to live with. On a regular basis I convince myself that I am ill and that I am going to die. I may not be physically ill but mentally I am there living it and experiencing it. I believe it deeply and wholly. To me, in my mind, I am sick and I am dying. Fact. And it’s not until my symptoms subside or I get a doctor's diagnosis that I believe otherwise. It’s petrifying and mentally exhausting.

Hypochondria is not a silly, frivolous or indulgent condition to have. It’s no fun to live with and is certainly no joke to be laughed off. I hope that one day it will be seen as the crippling anxiety disorder that it is and treated with the respect it deserves. But until that day I refuse to be ridiculed for a condition that I have as little control over as my OCD, PTSD and Depression. I refuse to be made fun of and refuse to believe that my very real fear is trivial, petty and insignificant.

My name is Jess. I am a hypochondriac and I will not be ashamed.

Wednesday, 2 March 2016

Grief in all its Sh*tty Splendour

By the time you are reading this post I will have been to my Grandpa’s funeral. I wasn’t sure how it would go but based off how I’ve felt since he died on the 13th of February I thought I might get through it without turning into the sodden mess I was at my Uncle’s funeral in December. Oh yeah, this *is* my second funeral for a close relative in about two months, I’m more than ready to be done with death at this point. Like seriously, fuck off death.

You might be wondering where the hell I’m going with this after that opening – basically grief is a weird mess of feelings that after three family deaths in the last 5 years I still don’t fucking understand. Every time I’ve lost someone, I’ve felt so differently to the point that I don’t even know how I might react in the future. Not that I want to contemplate that right now. Not even a little bit.

Back in 2011 my Granddad died suddenly and I’ll be honest it fucking floored me. Hell it still bothers me from time to time and it’s nearly five years since it happened. At the time I took a rather odd method to dealing with things – I wrote a blog post about it (here) and since then I’ve had a dangerously morbid sense of humour when it comes to talking about the subject of death. By making awful and borderline inappropriate jokes I stave off the constant crying that might otherwise occur, while possibly at the same time making people think I’m slightly unhinged.

I was so angry and devastated for months after my Grandad died, it was such a sudden occurrence that we were all left reeling at the void that had opened up beneath us. Just processing that he wasn’t there anymore was impossible. I had the distinctly dubious luck to be present at the hospital when he passed along with the rest of my family so now I have a ghoulishly detailed memory of that god-awful Thursday night to haunt me for likely the next twenty years.

This is the version of my Grandad I want to remember. :D

With hindsight comes a few consolations. While I may rail bitterly against the knowledge that my Grandad never got to meet my boyfriend Mark (known to Twitter as Le Boyf), or that I’ll never be able to hear him sing at my wedding one day (goddamn just thinking about this makes me choke up), I have to remember that not long before he died my Grandad was diagnosed as being in the early stages of dementia. If he hadn’t gone when he did, he could have slid away from us bit by bit until he was less than a shadow of the vibrant man we loved. I now understand all too well that it was a very back-handed blessing that my family was spared that awful experience. At least that time.

My Uncle’s death in December was grossly unfair and heart-breaking, but it wasn’t a surprise – he had had a massive stroke in April 2014 and by some fucking miracle survived. Only for us to learn several weeks later that the blood clot had been caused by several brain tumours and that he likely only had 4-6 months left. Which obviously was a thorough kick in the spine once we were already on the floor. He was only in his mid-50’s and had already battled melanoma twice before, surely he’d had far more than his fair share?

The only two positive things that came from my Uncle’s diagnosis was that although he couldn’t really speak or use his right side due to the stroke, he was still unmistakeably the same man in his mind. The other positive thing was that the 4-6 months prognosis ended up being 18 months which I will never stop being grateful for. I’ll be honest now, the women in my family are more than a little high-strung and opinionated so it seems to be the trend that we gravitate towards very chill and easy-going guys who don’t mind living with our nonsense. My Uncle Peter was quite possibly the most laid-back person I’ve ever known and had a fantastically wicked sense of humour that he kept the entire time he was battling the cancer.

The last time I saw Peter was at a joint birthday party for me and my Grandma last October (we’ve always had joint parties since our birthdays are on the 7th & 11th). I didn’t see him again because his health started to deteriorate later that month and continued to worsen through November so both me and my sister were told that it was best if we didn’t see him like that. I do not regret that decision in the slightest.

The birthday party was held at my sister’s flat in Nottingham so from my house takes a 15 minute drive and a 30 minute tram journey to get there. When Mark & I walked onto the street where her building is, we were met with an odd sight. My cousin Jamie, my Aunt and my Uncle Arnold were cleaning the roof of my Aunt’s car in one of the parking spaces.

It turns out that as my Aunt was driving round Nottingham’s god-awful ring road she had to get round two cyclists who were hogging most of a lane. As they passed, my Uncle Pete thought it would be *hilarious* to stick two fingers up at the cyclists, using the one hand that still worked. Apparently the blokes weren’t too impressed by my Troll Uncle’s antics and when they were stopped next to the car at some traffic lights soon after, took it upon themselves to throw a carton of milkshake onto the roof, resulting in the mess that I saw them cleaning up.

My Aunt was beside herself and threatened to put mittens on Pete if he dared do it again. Pete being Pete, spent pretty much the entire afternoon flipping the V at us all every chance he got, grinning like a fiend as we howled with laughter. There is a picture from that afternoon which I will cherish forever because it so perfectly epitomises who my Uncle was and I’m so glad that it’s the last memory I have of him.
Auntie Michele & Uncle Pete

Losing him was such a heavy blow but at the same time, we knew he was no longer suffering and it would be callous to wish for him to still be here if it meant he was in prolonged agony. He could have died straight out from the stroke and we would have been left shell-shocked and bereft like we were after Grandad died. But we were astonishingly lucky to have been given the gift of 18 more months with him when we thought we had only a handful.

We had the time to say goodbye on our terms, time to fortify our hearts against the wave of grief that was looming on the horizon, to brace ourselves to weather the storm. We could hold onto each other until the surge subsided and then pick our way back to the shores of normality. I’m not sure if we’re in the clear yet. But one day we will be.

For my side of the family though the waves swept us out again in February. My Grandpa (I will always love how everybody seems to have different epithets for their maternal & paternal grandparents) died suddenly on the 13th February but on this occasion I did not cry. In fact I only actually cried on Monday at the funeral right at the end when the final song started to play – Josh Groban has a lot to answer for. Before you really start to question my sanity I need to explain why this third death has affected me so differently.

My Grandpa had been ill for a long time. He was diagnosed with Vascular Dementia about a year or so after my Grandad died. I honestly believe that the shock of his death probably hastened the onset of my Grandpa’s illness. I don’t know how usual it is for both sets of grandparents to be friendly like mine were/are - for as long as I can remember my Gran & Grandad have got on really well with my Nan & Grandpa. We had them all at my parent’s house every Christmas and we even took them on holiday to Florida with us twice.

Grandpa Charles & Grandad Don (L+R) at Epcot


But over the last few years dementia slowly robbed my Grandpa of everything that made him who he was. I think it was sometime in 2012 or 2013 that I went to my Nan’s house for the first time in several weeks or maybe a couple of months and was so struck by how different he was even then that I started to cry. He was starting to hunch over and shuffle his feet as he moved and my Nan had to guide him back to the sofa.

That was the top of a long slope which Grandpa kept sliding down, becoming less and less able to function, more and more dependent on my Nan until she was unable to leave him alone for more than a few minutes without him getting agitated. For the last 9 months or so my Nan has effectively been house-bound caring for him up until the start of December when he finally had to be moved to a hospital as she was no longer able to look after him at home.

Like with my Uncle I hadn't seen my Grandpa in several months as my parents felt it would only upset me and my sister to see him how he was - unable to really move by himself and so far gone with Dementia and Alzheimer's (that little shit of an illness rocked up to the party eventually) that often he didn't recognise my Nan or my Dad and would be shouting and swearing at them. I didn't argue with my Mother about this, it was awful enough seeing him sitting vacantly on the sofa, barely aware of what was going on around him let alone seeing a complete stranger effing and blinding at his family.

I think that's a lot of why I'm not all that sad now. To my mind my Grandpa has been dead for a couple of years already - at least the essence of him has been gone for that long. The dementia was like a vicious sprite frolicking through his brain, gleefully shredding everything that made him the person I recognised as my Grandpa. All that we saw each day was the hollowed out shell left behind.

I'd be lying if I said I hadn't wished he'd died sooner. Seeing the increasing strain and distress that his worsening condition caused for my parents and my Nan, made me wish that he would just slip away that last little bit during the night so the awful drawn-out trauma could finally be over. Every day that he continued in that shade of an existence was another day of good memories that were stripped from the time Before. It's hard to remember now how he was before 2011 because the fucking Dementia has seared it all away, leaving me with only the memories of the man who was no longer my Grandpa.

That Saturday when we got the phone call from my Nan to say that he had died, I felt a numbness that shocked me as well as an even more disturbing sense of relief. Finally. The suffering was over for him at long fucking last and the rest of us could stop holding our breath. 

At the funeral there were so many people that some had to stand at either sides of the room. That was wonderful to see. My Grandpa was a very popular and well-liked man and I envy all those old friends and work colleagues their happy, untainted memories of him. I actually read a poem at the beginning of the service. When I agreed to do it my Mother was impressed but for me I didn't anticipate that I would be too upset to manage it. After the service everyone kept congratulating me on how well I had done with the reading and I honestly felt like a bit of a fraud for *not* having been more upset about it.

I don't think many people would quite get what I meant if I said that I wasn't sad because I'd already mourned the loss of my Grandpa over the months that he vanished before our eyes, so I kept nodding and thanking all the people I didn't know as they told me how brave I was. Brave is the last word I would have used for me on Monday.

The point that I think I'm trying to make is that Grief and Death are such intangible lethifold-esque beasts that you can never guess whether they'll sneak up on you and devour you whole, or whether they'll rip apart those you love and leave you standing in the remnants, too shell-shocked to feel anything. You never know what you'll feel until the feelings hit.

I hope this may have meant something to some of you, and that you found a nugget of happiness from the few happy moments I've shared. It's been incredibly hard to lay out all these thoughts so I do hope they make sense. 

Thank you so much for reading.