Showing posts with label Health. Show all posts
Showing posts with label Health. Show all posts

Friday, 21 July 2017

You're a Weakling

You're weak. The weaker sex. Weak in mind. Weak in everything. You can't even open a bottle of water. Life is about survival of the fittest, weaklings don't survive. What is the point to you?

These are thoughts that have been whirring through my brain for the last few years. Despite the fact that I knew I wasn't well, despite knowing that my lack of strength wasn't entirely my fault, my brain liked to convince me otherwise. And the problem is that the longer my brain poked at me and told me that I was, essentially, a pathetic human being, the weaker I felt myself becoming. I didn't want to fight the voice any longer. I didn't want to survive much longer either.

And this is just one of the issues I have with my brain. Sometimes it can be a struggle to get out of bed. And one point it was because my body was physically unable, sometimes it is because my brain made it emotionally impossible for me to gather up the motivation.

Yet through it all, I still tried to convince myself that I wasn't that weak. Growing up, a lot of my personality stemmed around the fact that I was strong. Not mentally because I don't think I've ever been mentally strong. But physically. I was the one in our female only household who could open the tough jars, the one who could carry the heaviest items. I helped at school doing the things with the boys that some of the girls shied away with. My strength and my muscles made me feel less conscious of my weight. I wasn't just overweight I told myself, I was also overweight because of my muscles that made me strong and capable. 

I never wanted to be one of the men and I never wanted to be one of the strongest women ever, but I was proud of the fact that I wasn't weak. 

So becoming weak has definitely taken it's toll on me. 

It didn't occur to me until recently just how weak my body has become though. After being physically ill for over two years and still not doing much strength exercising, I am at a point where I can barely carry a handful of books without it hurting my arms. And it sucks. 

It occured to me the most when I was moving my furniture and my little sister who was always weaker than me was able to carry items effortlessly whereas I stood with arms shaking and sweat pouring out of my skin, barely able to keep holding on. 

And then on holiday when I went to Go Ape and didn't have the strength to lift myself up over some of the obstacles or even keep myself in a sitting position for a small portion of time. 

My physical strength has gone and it is going to take a lot of emotional strength for me to get it back up to speed. Now that I am feeling better - albeit that's a swinging roundabout at the moment - it is time for me to start getting my strength back. It's going to be a tough and long uphill battle. It is the longest time I've ever gone without properly exercising but I can do it, right?

So every day I am going to wake up and tell my brain that it is wrong. 

I am not a weakling, I am weak today but I will be strong again. You just wait and see.


Friday, 24 March 2017

It Finally Happened... I Got A Diagnosis!

If you've been following Safe Space for a while - or know me at all - then you will probably know that I have been really struggling with my physical health. I've written a few posts about my journey on this blog which you can find here, here, here, and here.

It has been two and a half, maybe three years (I've lost count to be honest) of pain, extreme fatigue and utter frustration. I went from one doctor to the next trying to explain to them what was going on with me and how I knew something was wrong and I kept being dismissed, told to lose some weight, sleep more, eat better, do physio, etc. They tried to treat me with respect but mostly I think they thought I was just wasting their time. I had anxiety and OCD and depression and it was all just causing my body to hurt. So they sent me away time and time again. Sometimes with a referral, sometimes not. But at the root of it, I knew that they didn't think there was anything wrong with me.

Maybe I am judging them too harshly. After all, they only get to see me for ten minutes and when I'm around doctors I clam up, especially when they started blaming it on my mental health or weight. I would just nod and let them tell me that I need to exercise more despite the pain I was feeling which made it hard to get out of bed, let alone exercising!

About a year and a half ago I read somewhere how crucial Vitamin D and B12 were and how they could be a cause for fatigue. After having every other blood tests under the sun and all the results coming back completely average, I was told that "everyone in the UK is vitamin D deficient anyway so there was no point in testing for it." I was told that if I was still concerned in six months, to ask for a test then.

I did. I was told that I was probably just overweight and overworked and thus that was why I was feeling lethargic for that reason. I told them about my painful hands - because how could they be hurting if it was just because I was overweight - and that did seem to stir something in my doctor but instead of the blood test I wanted, she booked me in for an x-ray on my hands to check for arthritis.

But guys... I finally managed to get a doctor to agree to a blood test to check my vitamin D and Vitamin B12 levels.

And guess what?

I am severely vitamin D deficient.

The average person should have a level reading somewhere between 75 to 200. A reading of 25 is considered extremely deficient.

My reading came to 17.

17.

Do you want to know what I've found out about vitamin D deficiency?

  • It causes unexplained fatigue
  • It can make it difficult to think clearly
  • It causes bone pain
  • It causes joint pain
  • It causes muscle pain and weakness
  • It can cause weight gain
  • It can make it harder to lose weight
  • It can affect serotonin levels increasing risk of depression
  • It can cause gut issues, especially concerning lactose...
Do you want to know something else?

I have all of these symptons. Every. Single. One.

I knew something was wrong. I knew it wasn't just because I was overweight because I have always been overweight and so why would my body suddenly be complaining about it all now? 

And because I knew it, I did not give up. I kept going back. From one doctor to the next, from one test to the next. I was determined to get the bottom of it and determined to prove the doctors wrong - it wasn't just because I was an overweight lazy person or because I ate like crap or because I was mentally ill. It wasn't all in my head. There was something wrong with me.

I have been told it will take a while for the supplements I now have to take to return my levels to normal but I have a hope inside of me that I haven't had for a long time. I believe that I can get my activity levels back up, my energy back up and be the person I used to be, the person I long to be again. It may take time, but I'm ready. I've waited three years, what's another few months?

So to end this post, I just want to say that if you have something ailing you, if you are certain that something in your body isn't right, please listen to your body and keep going to your doctor until they take you seriously and you get the diagnosis you need.


Friday, 3 February 2017

Being Ill And a Hypochondriac

I am not good at being ill. I'm one of those annoying people who complains about being ill and how run down I feel and how I just want to go out and do all the things and not sit in my bed doing nothing. I more or less get cabin fever within the first day of being ill. Unfortunately all of this means that I am also very good at ignoring that I'm ill. It means I will still go places and do things when my body is practically screaming at me to rest because I hate being ill.

But aside from the actual illness being a pain and a nuisance, the other reason I hate being ill is because I am a hypochondriac. In case you haven't heard of this term before, it means that I am incredibly anxious about being ill. Jess wrote a brilliant post about it here on Safe Space as well which you can find here and which had me nodding the entire way through as well. 

What being a hypochondriac as a healthy person means is that every ailment I get - headache, muscle ache, itchy eye, etc - is over-analysed. It means that I am dying. I have an incurable illness and I will die a long slow and painful death. The problem is that as with every other anxious thought, I know it's not rational to think this way but I also cannot help it. What this means, of course, is I end up with other symptoms because of the anxiety flowing through my body.

Now add in an actual illness and you can see how everything might just be a little bit worse. For me an every day common cold is the flu and I am going to die. A stomach bug is the worst stomach bug and I am going to die. So on and so forth. It means that I am constantly anxious when I'm ill. Constantly alert and constantly wishing to be better so I can confirm that I am in fact not actually about to die.

But where this all gets contradicted in my brain is that I also hate going to the doctors. So while there is a theory that hypochondriacs are always at the doctors asking for advice about certain ailments, this is not true for me. In my head, going to the doctors means that they will actually insist that I am correct and I do have an illness which is killing me. Not rational, of course but that's how my brain works.

The reason I'm writing this post today is because I have had a cough. It is a cough that I've had for over three weeks and it is a cough that came with no other symptoms. I have thus been worrying myself silly about it. Telling myself I have lung cancer and am on my last legs. And so on and so forth. All the while more or less refusing to go to the doctors about it. Also because of the "only if it lasts longer than three weeks" advice we're all given.

Turns out, when I finally went to the doctors, it was confirmed that I have Bronchitis. So I'm not going to die - huzzah! - but if I don't kick it soon, I may develop pneumonia so with that thought weighing heavy in my mind, I've been taking antibiotics for the last few days and really hope that I might soon be back to my normal health. Keep your fingers crossed for me?


Wednesday, 2 November 2016

Taking my Stoma to the Spa


I love a good spa day.


Swimming, a steam, hot tub, a treatment and being pampered in a robe and fluffy slippers. My idea of heaven.


Over the years I've found being in a relaxing environment such as a spa very much help me with my mental health and give me some much-needed reflective time alone. I tend to ask for them as gifts for Christmas or birthdays so, that every year I get at least two days of rest and relaxation. This year I received one but had to reschedule it three times due to Crohn's flare ups, surgeries and hospital admissions. Finally, during the end of my recovery from this surgery, I went.


Let me tell you, my body is different now that I have an ostomy bag stuck to my belly. I also have a wonderfully pink 5 ½ inch midline scar and a couple laparoscopic ones on my left side too. But I wanted to be brave and ‘show off’ my battle wounds. I brought a new bikini – a somewhat impossible task given it was September – and took the plunge.


This is me:

I am not perfect. I don't think that my body is where I would like it to be, but look at that scar! It's not all of it, nor is all my bag on show but those two things remind me I am still here. That I have fought my disease and came out the other side.

My writing and my words might make it seem like I am confident and slightly eager to flash my recent surgical scars but I am a shy individual; hardly every comfortable in her own skin. With my weight gains and losses over the years as I battled this invisible illness I have; I’ve loved and hated my body. This disease has given me the typical mooning of my face, the swelling of my belly, shrinking thighs and loss of my buttocks; I’ve grown accustom to these over the years, but the scars from someone cutting into me – surgical intervention - still shock me. If I am truly honest, not wanting those scars was a big factor in why I always tried all the medications. Why I always put up with the side effects from them too.


I don’t want surgery or my ileostomy to change what I do or how I am.

I walked into that changing room, took my clothes off and put a bikini on. Acted like my scars and bag were not there. If people stared, let them. I wasn’t looking for their acceptance. I was looking for my own.


Friday, 21 October 2016

What I Wish I Could Have Told You

As I mentioned way back at the beginning of this year, I’ve been having some difficulties with my physical health for a while now. Over the summer I was put through physio which was actually really helpful and every day that passed made me feel stronger and less weak but underneath it all, I still felt overwhelmingly tired and there were days when my muscles literally felt dead and my joints just screamed at me. As far as I’m concerned, these things were not normal.

So I booked another doctors appointment because I would really like to get to the bottom of everything now. Unfortunately my regular doctor wasn’t available at a convenient time for me so I had to book with a different doctor. This was the first thing that went wrong.

Now I am not in the dark about my weight. I am 100% aware that I am in the “obese” category of BMI calculators. I am also very much aware that I have put on a lot of weight recently - which is often what happens when an active person is physically unable to exercise regularly but you know… whatever.

But I am also 100% sure that my weight is not my overall health problem at the moment. I am very certain that my weight is exasperating the situation. That if I lost the pounds, I may not be in as much pain but I am also certain that I would still be in pain as I am positive that there is an underlying problem going on.

Of course, my belief of this in my own body is hard to portray to a doctor in 10mins. So in a way I am not surprised that she blamed all of my issues on my weight but at the same time, I am devastated. It felt like all of my concerns about my own well being were being dismissed. That I was just wasting her time and my time when all I needed to do was lose some weight and stop complaining. I felt like I was taking up too much space - which I feel enough without the help of a doctor basically saying it to my face.

But the real problem was that the second she mentioned my weight. The minute she told me that I was in pain because there was extra strain on my muscles and that I was tired because when you become short of breath after exercise you generally are tired, the fight went out of me. I became submissive and passive, agreeing with her instead of arguing that I knew that and this wasn’t that.

At one point I tried to tell her how active I used to be and she just gave me this look that took my breath away and nearly made me cry right in front of her; she didn’t believe me.

So today, I want to say those things that I should have said in that room. Because I need to explain to someone that I am not okay and it is not just because of my weight.

  • I have always been overweight. I have always been active and energetic and I actually kind of love doing exercise. The fact I wasn’t in pain before now makes me believe I’m not feeling this just because of my weight.
  • I am napping in the middle of the day. Maybe not a huge thing for most but I have never been able to nap. I could never get so tired that I needed to nap.
  • I am always tired. I have been tired from the age of 16 onwards but I still managed to do things. The tiredness I have now is different. It is exhaustion at it’s highest point. There are days when I simply cannot wake up and get out of bed.
  • I went from running 10k to barely being able to walk 5 mins without being in excruciating pain.
  • I am getting frequent migraines which never happened before. I have noticed that my trigger is over-doing it. If I’ve pushed myself too hard, my body repays me with a migraine.
  • I miss being active so much. It is metaphorically killing me not to be able to go for a run or a gym session or a swim easily.
  • Before this, I very rarely went to the doctors because I hate them and I just dealt with whatever was thrown at me. I don’t make a fuss of things. I am now because I know deep down that something is really wrong.

Maybe next time I will be able to make the doctor understand. But for now it is back to waiting and hurting and dealing. For now, it is just getting on with life, one day at a time.


Friday, 7 October 2016

I'm not okay... but that's okay

I’m okay. I’m okay. It’s okay. I’m okay. I am a-okay.

Words I have been repeating to myself for two months now. Words to reassure myself that my declining mental health is okay. It is just a blip. I am strong and can fight back and it IS okay.

But it’s time to be truthful to myself. Because I am NOT okay.

My depression is getting worse. My OCD more debilitating and my anxiety more overwhelming. On top of that my physical health seems to be hitting rock bottom again too.

And it’s starting to become too difficult to stand up and tell the world that I am okay. Too difficult to even tell myself it.

Yes, I have good days and I cling to them with everything I have. But they are few and far between at the moment. And that is worrying.

So I need to stand up and shout that I am NOT okay. I NEED to be truthful so that I can break down the stigma surrounding mental health - it isn’t about always being defeated, or about winning forever.

But also because once I am truthful to myself about not being okay then I can start working on fighting back again.

Something I am now already doing again. A long uphill battle, again. But one that will always be worth it because life is a gift and I have to remember that it is precious. I am not going to let my mental or physical health take that away from me.

Not now. Not ever. 


Friday, 26 August 2016

One Step At A Time

So you all read this post, right? Where I explained how my entire life has recently been turned upside down and I had to go from being really active to barely able to walk for five minutes without dying. It's been tough. Emotionally and physically for me. There have been times when I've wanted to just give up on trying to be better and just stay in bed all day. Times when I've felt guilty for not being able to walk up the stairs and having to take the lift, guilty for asking someone I'm with if we could slow down or stop because I felt unable to carry on. 

I have also spent a lot of time wondering if I'm making a big thing out of a small thing. That maybe I am just unfit and causing a fuss.

And I keep going back to that thought.

Over and over again.

And it is because I am starting to get better. I still am nowhere near where I was. I am still scared of even trying to work a full time job and there is no way I could walk to and from work or go out jogging again but I am not the same person I was in January wherein I had to spend days in bed to recover from small activities.

So because I'm getting better, and I'm starting to feel better. I wanted to just write a quick post on here to tell you about some of the things that I've achieved lately that I've been proud of. Things that seven-eight months ago, I never would have managed. Because then I can show to you and also to myself, that I am on the road to recovery. I may never get to where I was but if I keep working, I might get somewhere near to it.

  1. I can climb the three flights of stairs at work without crying out in pain.
  2. I can walk for a good half hour before I need to slow down.
  3. I can carry heavy piles of books and/or bags again
  4. I don't feel as achy when I wake up in the morning
  5. I don't feel as achy after driving for 30minutes.
  6. Yesterday I climbed the equivalent of 15 flights of stairs and while I was out of breath, my legs and hips did not hurt until 4 hours later. Which is unheard of.
Of course, with all those amazing achievements, I still have things that I do now or cannot do now that I used to be able to, such as:

  1. If I've been driving for a long time, my left arm is more comfortable in my lap then on the steering wheel, giving my muscle a break.
  2. I still cringe at the idea of running and how much my muscles will hurt me for the task.
  3. If I don't do my physio exercises, I can struggle to get out of bed.
  4. I am still incredibly exhausted most days.
  5. When I have done too much, I can barely get up out of the chair as I hurt all over.
  6. I'm still getting bizarre and annoying pains in my fingers and knuckles.
I am not 100% okay but I am better than I was and I am so happy about it. If I could get to a point where I could job for 10mins once a week, I think I will be happy with life again. That is my ultimate goal and I am going to make it. I'm sure of it.

It's all just about taking it one step at a time.


Monday, 25 July 2016

Do You Remember?

I get asked this question a lot. When I answer no, it is often met with an eyeball or a sigh or an exclamation of disbelief. Sometimes I lie, but that can always be a dangerous move, especially if you are caught out later!

I don’t quite know why I am so bad at remembering things. I’ve always loved a good to-do list, and my calendar is my godsend. But a lot of other people are the same. So what makes me any different?


It’s gotten to the stage where I can’t remember a conversation that happened a few days ago, or what i need to buy at the supermarket. I forget about books I’ve read and am meant to be reviewing, or places I’ve been to. I forget what I ordered last time, and for someone that likes to always try new things, this is devastating news. I also (ironically enough) always forget about blog posts I have previously scheduled, including my Safe Space ones! It is also quite disconcerting when people remember stuff about you that you have no recollection of doing or telling them. 

As many of my friends will know, I also have issues with always being sleepy. I don’t know if this is linked, and its something I’m in the process of finding out! But either way, I need to learn how to deal with my scatter brains. I’m trying my best to adapt to it. Here are some of the things that help me out:

  • LISTS. I already mentioned that I love a list. Except now I have a list for everything. I have made spreadsheets for books I’ve received and want to read, places I’ve been to and want to visit, future events and money I’ve spent. I keep a personal to do list. I also keep one at work, crossing things as I go, scheduling things in for the week to come. At the end of each working day I go through the list from today and reschedule anything I haven’t done for tomorrow or subsequent days. You might think I can look at the previous day, but then things get missed and it causes stress. 
  • REMINDERS. I don’t use these as much as I should. I tend to dismiss them on my phone because the notification irritates me, rather than using it to actually do the thing. Also the reminder always comes when I am busy, but I then subsequently forgot about what I'm meant to have done!
  • BLOG POSTS. Not only do they serve as a good memory of a great time or a favourite book, they are also a reminder of where I’ve been. Me and my friend Stacey use the Swarm app to check into places, and its been really helpful in figuring out whether I’ve already visited somewhere. 
  • GREAT FRIENDS. Quite possibly the most important point. My friends are really understanding when I am constantly asking them for reminders of times and meeting places. It also means I quite often repeat myself, as I can’t remember conversations easily. 

I don't really know what lies ahead. My mum is quite forgetful, and I always use to laugh at her as a kid but maybe it is hereditary. Quite possibly when I get my sleep issue sorted out (more on that another time!), I’ll get better at remembering things. For now, I'm just trying my best to stay organised in my own quirky little way! I'd love to hear your organisation tips. 

 photo safe space bio_zps8jlgrcn3.png

Sunday, 10 July 2016

Life Turns On A Dime

There’s a saying: ‘life can turn on a dime’.

And in the past few weeks I’ve never understood this phrase more. I got dumped. I suddenly fell in love with exercise. My diet is literally the sort of diet I used to think was grim as hell. I am pushing myself to deal with my anxiety. From where I was a month ago my life is completely different in so many ways. And it shocks me how fast we can change the direction of our lives, whether it’s through our own choice or someone else’s.

And it got me thinking. If you could change anything about your life what would it be? Would you be healthier? Would you be braver? What would you change? What’s something you desperately want?
And then think about this…

What is it that is stopping you from doing it?

Yourself?
Others?
Society?

Now think again, if you take away the boundaries that YOU set for yourself. The boundaries that people who know you set around you. The boundaries that society sets…

NOW what’s stopping you?

I’mma guess nothing.

Because the only reasons we stop ourselves from doing the things we REALLY want to do is because we allow these boundaries to act as immovable walls.



NO.

PUSH THROUGH THEM.

Want to be healthier? Teach yourself self-love, self-compassion and treat your body like the temple it fucking is. People telling you that you’ll fail? You’re not good at sticking to things? Tell them to get out and go and sort their own problems out before they start passing judgement on you. Society telling you you’ll never be as hot as all the sexy women of the world? Even if you’re healthy you’ll never be like them? SCREW THAT.

DON’T LET ANYTHING STAND IN YOUR WAY.

So often we think we can’t do things because we tell ourselves we can’t and then people we know and society help validate those feelings of inadequacy. And then we think ‘I can’t do it so I’m not going to even try.’

For YEARS I’ve thought I’d NEVER be able to lose weight and that I’d just have to accept I’d always be fat. And people just sort of perpetuated those feelings…’you’re not very good at sticking to healthy eating’ etc. But I got an exercise bike, some weights and started to eat less processed food and suddenly I realise that I CAN lose weight. I CAN get fitter, stronger, healthier. And that’s because I smashed through the wall. When I was using my exercise bike, looking like a fat whale, sweat dripping off me and a red face I was like ‘this is gonna be pointless because I’ll never be sexy or thin or strong’ and then I was like ‘NO WAIT. I WILL BE. I CAN BE.’ And I kept pedaling and that was my metaphorical wall that I knocked down. I realised that the only thing that EVER stopped me from achieving what I wanted was ME. And my fear of being laughed at or failing or never getting there.

But you know, isn’t it worth trying? Isn’t it worth failing than never trying at all? Isn’t it worth taking a hammer to the wall? You might not get through to the other side first time but every time you try you make those bricks looser and soon you’ll find you get through that wall.

Make a decision, let life change on a dime for you. Do something you never thought you could.


You’ll surprise yourself. 


Friday, 24 June 2016

Listen to Your Body

Head in handsI was umming and aahing about writing about this topic for today, because I have no real answers, no real conclusion. But then I read Faye's post, When Your World Turns Upside Down (which is incredible, do read if you haven't already), and realised that sometimes talking about things even when you don't have the answers can be helpful - for yourself and for others - and maybe I need to admit some things to myself.

Ever since I was a teenager, I have known that my body reacts negatively towards stress, though it only ever affected my periods. If I had a presentation at school, or exams coming up, or, as I got older, had interviews for jobs, I would get nervous. Those nerves would guarantee I would miss a period - or rather, it would be a few weeks late. If, for example, my period was due in the second half of the month, and any of the above was happening, I wouldn't have my period until the first half of the next month. It would be late by two or three weeks. And, really, even silly things like working up the courage to talk to that guy would make my period late. It just became normal for me; my body didn't like being even a tiny bit nervous, and so my periods were irregular as a result. But over the past two years I've noticed my body is even more affected by stress.

As I've talked about before, my Nan died of cancer last year. In 2014, when we found out her cancer was terminal, I was distraught - completely devastated. For a while - until I decided I just couldn't think about it. It was inevitable, there was nothing I could do, so why spend the whole time worrying, fearing, and being upset by it. Of course, I was still upset, but I just decided to concentrate on other things, and enjoy the time I had left with Nan. But, despite not to dwelling on it - and actually genuinely not worrying - subconciously, it was affecting me, and my body paid for it.

For about three or four months, I would have several migraines a month. I was having such a hard time sleeping - not because things were playing on my mind, but simply because I couldn't go off, and even once I did, I would wake up numerous times in the night. More than once I'd go to bed at a reasonable time, and still find myself awake at 5am. I started experiencing numbness in my arms, which was a result, my doctor told me, of me taking quicker, shallower breaths I didn't even notice. And I started having panic attacks.

I got on the bus one morning to go to work, and two stops in, something just wasn't right. I started having difficulty breathing, and I was overly hot. The bus wasn't very busy, but I felt there were too many people on the bus, it was too crowded, I need to get off; something wasn't right with me, and I couldn't breathe! I got off at the second stop, sat at the bus stop for a bit, thinking maybe I was hot and needed to cool down. But no change. I had no idea what was wrong, but something wasn't right, something was happening, and I was so, so scared. Partly because I didn't know what was happening, but also because it was another symptom. I managed to make my way home, sobbing, running to my Mum, freaking out, and her telling me I was having a panic attack. Slowly, she managed to calm me down. Over the next few days, she had to travel in to work with me, because I couldn't stay calm - even though there were no problems at work that were worrying me, as soon as I started to get ready to leave, I could feel the panic rising.

I went to my doctor with all these various problems, and she told me it was very likely down to my Nan's terminal diagnosis. She referred me to a counsellor, but because of clerical issues (i.e. people not picking up the phone) nothing ever came of it. And I didn't really worry about, because by this time, all my symptoms of stress had gone. Migraines were under control, no more panic attacks or numbness or sleeplessness. I was fine.

The migraines crept up again, though, at the end of last year, the beginning of this. Last year was such a terrible year, and all the death and illness had really taken it's toll. And so migraines. Again I saw my doctor, and my medication was increased, and instead of having it when needed, I was to take it every day. And I'm pretty glad to say that on the whole, those pills are miracle workers.

More recently, there have been issues at home. Financial difficulties due to my Dad being ill. My brother and I were covering most of the bills, but I was worrying we wouldn't be able to pay for everything. Would we actually be able to eat? Can you imagine asking yourself that question? That being a genuine worry? The stress caused patches of eczema to form all over my legs for the first time in my life, and - surprise, surprise - another migraine. But that question would fly through my head while walking down the street, and I would feel a panic attack brewing. I'd have to try and slow my breathing and talk myself down; "Joanne, you're ok. You're fine. Of course you'll eat, even if it's not what you're used to, you'll eat. Everyone will eat. You'll all be ok. You're fine, Joanne, breathe." This happened maybe two or three times. Not full blown panic attacks, but still.

I've been talking about these recent events in much more detail with my friend and penpal Caoimhe in our letters. About these almost-panic attacks, about my problems at social events, and even some issues I have talking on the telephone. She has some experience of mental illness, and talking with her, I think I might have some form Anxiety. Possibly. And I think I might need to see my doctor to discuss it. But I don't know; when I'm not stressed, I'm fine? (Except when faced with social situations. Or certain phone calls.)

I don't know if they all tie in together - are migraines a symptom of Anxiety? Or are they both just caused by stress? - but what I do know is that my body is hugely affected by stress, and I really need to pay attention to it. I don't know what the answer is; there are a lot of things that are out of my control - I can't do anything about other people's health, and the stress that can cause. But I do know I can listen to my body, and know when things have to change. I can't stop the symptoms of stress when I can't control what's stressing me out, but I can look after myself a little more when my body is telling me things are just not ok.

Kathy Brown is a writer I really admire who writes such incredibly beautiful, insightful posts. In one of her recent posts, A Little List of Life Savers, she says:
"...I've learnt that there are things you can do: simple, tangible things that you can do to stop yourself from drowning: to take a small level of control over your life when the dark cloud creeps in: to distance yourself from that inherent, daily hum of fear, or the desire to run away screaming, nude and wreckless, because 'OMG, LIFE.' To do something, anything, with the day, because sometimes, that's all it takes."
Kathy reiterates this in her latest post, How to Love Yourself:
"On the days you feel like you're drowning, because there will be many of those, do at least one thing, one small, tangible thing that gives you a sense of control, a sense of something. Brush the knots out of your hair, do the crossword, wander to your favourite cafe and order yourself a slice of that cake you love: the one with the berries the same colour as your favourite lipstick and the fresh cream that lingers, like an unexpected kiss, on the corners of your mouth. It's there, somewhere, that little beacon of light, even when darkness blinds you."
I need to listen to my body, and go to the park by my house and sit by the lake, and watch the water droplets from the fountain dance in the breeze. I need to have a soak in the bath. I need to read a book and get lost in someone else's story. And I need to allow myself to feel, to cry, and to ask for the cuddle. Because maybe being scared and upset is just what my body needs me to feel, even if I think I'm wasting time. Maybe I need to voice my concerns about our finances, and get that reassurance, that actually, we will eat, we will get by, things aren't quite that dire just yet (which I did, eventually).

I don't know where this will lead for me. Maybe I'll discover I have a mild form of Anxiety. Maybe I'll need to learn techniques to cope with stress so I don't end up getting ill. Maybe this is just how my body works, and I'll just have to live with it. But I know when my head isn't in a great place, my body pays the price, so I need to start being gentle with myself, allow myself to feel, and get elbow-deep into self-care.

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Sunday, 19 June 2016

When Your World Turns Upside Down

So a fair few weeks ago I wrote this post about being large and loving fitness and this week, I have a rather opposite post to write. For the last two years, but most specifically within the last six months, I have been struggling with my health - and because of it my fitness has had to be pushed to the side and it has been incredibly difficult to deal with. So today I wanted to talk about what is happening to me, how I'm dealing with it, my hopes and my fears for the future.

I first noticed something wasn't quite right about a year and a half ago when I was training for a 10K run I was doing in June. Whereas once I would go out for a run and afterward I would feel refreshed and refuelled, I was suddenly feeling more deflated and exhausted after the run and for the next few days after it too. From there I started noticing other issues, all minor and nothing I really paid much attention to.

Until I did. Because I started getting hot flushes - and at twenty-five it was pretty alarming to wonder if you're suddenly going through early on-set menopause. So I hot-footed to the doctors and went for blood test after blood test, I was poked, prodded, had to do urine samples, ultra sounds, etc. But they couldn't find anything wrong with me. At first I left it at that. They'd done what they could and it was fine.

But then the pain started. Pain and incredible fatigue. Like my whole body was shutting down on me. I found it difficult some days to get out of bed. Other days I managed to get five minutes down the road before feeling like I needed to stop and give up. Other days were good. And I'd get to the end of the day and wonder whether I was just imagining all the pain from the days before. Those were the days I exercised and would ultimately regret it for the next three to four days afterwards.

So I went back to the doctors. And then I was put on the antidepressants - you can read about that here - because the doctor thought my physical symptoms might be linked to my mental health, which I had been suffering with for a while (though even I didn't realise how much until I started taking the antidepressants). As you know, the pills have been helping my anxiety and depression, but I still feel the same physically - if not worse, than I did when I started them. And now I'm in limbo land. The doctors have referred me to physio - which has finally come through - as I thought it could be Joint Hypermobility Syndrome. There has also been talk that it might potentially be Chronic Fatigue Syndrome or Fibromyalgia. But at the end of the day, I still don't know what is wrong with me.

It could be nothing.

But I doubt that. 

Because I hurt every single day. I never feel awake and I know it's a different tiredness than it used to be. I ache after doing the simplest tasks and I still have days where I am physically incapable of getting out of bed. Even having to wait until my bladder is screaming at me before I can force my limbs to move. That, to me, is not the sign of someone who has nothing wrong with them.

So even if the physio comes back and says there is nothing wrong with me, I won't stop going to the doctor. I will go and get another referral. Another opinion. I will keep trying until I know what is wrong with me. Even if it turns out to be incurable. Because I need to know. Living in limbo is difficult.

Especially as I love being active. I feel lazy when I don't do things. I feel useless when I feel unable to do simple tasks like chores. I feel guilty when I have to spend all day in bed and don't even have the energy to read a book. Because I haven't been diagnosed with anything. So, to everyone else I'm not ill. And in my mind, it makes me feel like I'm making a fuss. I'm just overreacting. So when this happens, I try to remember the days when I've been at my worse - like when I was in so much pain my legs could barely keep me upright, and when I walked too much and my hip hurt for three days afterwards.

But I will re-train my mind. Because even if the doctors never do find anything diagnosable I know I don't feel right and may never feel right and I need to learn to live with that. As difficult as that may be.

I want to end this post to say that if you feel like you're ill but the doctor keeps sending you away, please go for another opinion. Keep going until you find a doctor who actually listens and understands. Because no one knows your own body better than you do, so no one knows better than you if something feels wrong. 



Wednesday, 15 June 2016

Not Counting the Calories

A few weeks ago, Laura wrote about how she had begun counting calories as a means of losing weight. I was really interested in this piece as calorie counting has often been employed by me so that I can try and lose weight or at least maintain a healthy weight. However, since the beginning of May, I have neither weighed myself nor actively counted calories.

“I am an eater of numbers. I prefer packaged foods, foods with a bar code, because they make the math simpler in counting calories and that gives me a sense of peace. It’s just an illusion of control, really, but that illusion is everything.” – Melissa Broder


As someone who has very polarised views, as well as being wholehearted and putting my all into everything I commit to, I could probably rightly claim to have an addictive personality. This clearly has its downsides. If I’m trying not to worry about what I’m eating, I might eat too much and put on weight in a short period of time. The biggest problems for me come If I’m intent on losing weight, however. 

I will weigh myself daily and count every calorie that enters my mouth. I become obsessive. I have been in tears if the final meal of the day puts me seven calories over my recommended daily allowance. I will avoid any packaging that shows food that contains a large portion of a particular food group. I will spend ages in front of a supermarket chiller, trying to find the lowest calorie sandwich. If, after all this deliberating, I have still put on weight, I will reduce my intake the next day. My meals, in those moments, have become about numbers instead of nourishment.

I’ve been overweight and in that period of time, I really didn’t like the way I looked. I was desperate to look like I thought I was supposed to, forgetting that at 5 foot 10, I’m unlikely to ever be a size 6. I was appalled at myself and yet, even then, I knew that losing weight wouldn’t change the way I saw myself. Alas, now within the healthy range again, I still dislike what I look like. I’m learning that weight doesn’t equate with happiness.

So what does this mean for me?

 I want to be healthy. This is so that, as Laura said, I reduce the risk of disease later in life and my body works well. I want to be eating a balanced meal, but that doesn’t mean that I can’t have the occasional cake or a tub of pick ‘n’ mix if I feel like it. I want to treat myself respectfully and this means both not overeating, but also not under-eating as well. Food is meant to nourish us and give us the energy to live our lives. I want to know that I have the capability to do what I want to do, without being hindered by myself. I want to be happy because who I am is enough, whether that person fits into a smaller pair of jeans or has a little bit of flesh overhanging.

The more I practise eating in a way that allows me to keep fit and still enjoy food, the easier I hope it will become. I think I will gradually continue to adjust to what works for me in terms of portion sizes and the food I eat, but I don’t want weighing or numerical values to be a part of that. Having my happiness decided on by something as changeable as a digit means my mood and my self-worth are likely to be all over the place and we all know that’s not helpful.


I'm excited to try and find a place where food isn't another addiction for me. I’ll let you know how I get on in the months ahead!

Monday, 6 June 2016

My Breast Cancer Scare

You might have noticed that I was pretty MIA on Safe Space last month, and if you follow me on social media then you’ll probably know why.

In May I had a breast cancer scare.

I knew that I wanted to write about this experience but I wasn’t sure what I wanted to write about exactly. It’s all still pretty raw for me emotionally and I don’t want to go into the ins and outs of what happened. I’m sure you can all imagine what it entailed: a lot of doctors and hospital appointments, a lot of tests, a lot of waiting for results and a lot of anxiety.

Thankfully a story about being diagnosed with breast cancer is not a story that I have to share with you today and I have now been given the all clear with no further tests required. So I suppose that what I want to talk about is how this experience has changed me and what it has taught me because it has changed me, significantly.

For the past year I’ve been working on battling my anxiety and fears with my therapist, this usually involves taking small but steady steps one after the other over a period of time. When I found an unusual change in my right breast it forced me to abandon the baby steps that I’d been working on and run up onto a whole other staircase right at the very top of the anxiety building. Me, the girl who struggles to leave the house alone, suddenly had to go through a very real and terrifying situation that most people would find hard to deal with never mind someone with severe anxiety. I definitely felt like I’d been chucked in at the deep end and I was petrified. I couldn’t sleep, I couldn’t eat, I couldn’t function. I spent most of May watching mind numbing daytime TV, seeing my counsellor and just trying to get from one doctors appointment to the next without breaking down, everything else went out of the window.

When I was given the final all clear, no further tests required, I was ecstatic. I’ve never experienced such pure relief and joy. Over the past month it felt like weight after weight was being piled on top of me and I was shaking and struggling to hold that weight, certain that the next weight added would be what made me crumble. Now I could finally put those weights down and it left me feeling strong. During this time I really got to know my own strength and just how much I can cope with so it suddenly became easier for me to pick up similar fears that carried the same weight and deal with them. I’ve since started to conquer some of my biggest fears like they’re a piece of cake.

When I was entertaining the very real possibility that I might have cancer the thought that kept running circles in my head over and over was but I haven’t even really started to live yet. I’ve spent so many years trying to protect myself from any harm coming my way by not leaving the house, carrying out OCD rituals and avoiding what my brain deems to be scary and unsafe places but in building a protective bubble around myself it didn’t keep something bad from reaching me but it did keep a whole lot of good things from touching my life.

Having this scare made me realise that the bubble I built around myself for protection hadn’t worked. I wasn’t immortal, I wasn’t immune from illness, and the safety precautions I have painstakingly taken for years hadn’t worked in keeping me safe. Danger had still found me, it had still worked its way into the bubble and in that moment the bubble popped. It was like being told that this miracle safety drug that I’d been taking was actually a placebo and with that knowledge the anxiety and depression came rushing back in waves.

After speaking to my counsellor I realise that at that moment when the bubble popped I had what they like to call “the breakthrough.” The reason why I was suddenly feeling my anxiety and depression so strongly again was because the usual unhealthy way I used to cope with it before like avoiding leaving the house and checking a switch was off a certain number of times wasn’t working anymore and so suddenly the anxiety and depression that I could usually contain and control this way was now flying around all over the place creating havoc in my brain.

My counsellor told me in our last session that now comes the hard part, now I have to learn to manage my mental illnesses in a healthy way and find new ways to cope now that the illusion that the bubble brought me has been broken, which is scary but also exciting. I had the realisation that I couldn’t protect myself from danger, that it’s actually out of my hands, that it doesn’t matter what I do to feel safe it actually doesn’t keep me safe and in knowing that there is fear but also a greater sense of freedom. Because if something as scary as cancer can find me in my own bubble then heck why not do what I want to do if I’m going to be in danger anyway? Why not go for a walk in the park? Or go shopping? Or try something new? If keeping myself safe is an impossibility then why not make my new priority doing what I want to do with my life so that next time I’m faced with my own mortality the first and overwhelming thought in my mind isn’t but I haven’t even really started to live yet because if this experience has taught me anything it’s that life is too damn short and I’ve already wasted so much time on what ifs? I’m one of the lucky ones and it is my duty to myself to make the most of the time that I have on this earth. To love deeply, to talk loudly, to live fully and to never let fear of the unknown hold me back again.

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I wanted to end this post by highlighting a brilliant campaign called #FeelitontheFirst started by young breast cancer survivor Nalie Agustin that encourages people to check their breasts for any changes on the first day of every month. This allows you to become really familiar with what your breasts look and feel like so that you will notice any unusual changes if they should occur. Breast cancer can happen to anyone of any age, any gender and any lifestyle and is highly treatable if caught early. There is a lot of false information about breast cancer on the internet so if you find a change stay off Google and talk to your GP, you will never be wasting anyone’s time.


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Sunday, 15 May 2016

Counting The Calories

According to the BMI calculator on the NHS website I’m obese. 

Awesome.


I know I’m not healthy and I know I’m overweight but I’ve never ever been able to do anything about it. I’ve never had enough will power or self-control to try and improve my health. I’m the kind of person who says on a Monday morning ‘I’m going to start eating healthily’ and by Tuesday morning I’m back to my old ways because I haven’t lost three stone and got thin in the space of 24 hours!

Over the past few years I’ve become more and more aware of my own mortality and am realising that if I don’t start looking after my  body and health now then I’m gonna be in trouble later on in life. I don’t want to end up with diabetes or high blood pressure and I don’t want to put myself more at risk of cancer and heart disease and all the other nasty things that could happen to me if I don’t look after myself now.

So I’ve started to follow the NHS Choices lose weight plan. It encourages you to eat only the amount of calories you actually need in a day and to make sure you stay active. Simple. And the best way to get healthy.



I don’t believe in all these fad diets or replacing meals with shakes or supplements. The best way to stay healthy is to eat in moderation and to stay active. It’s as simple as that. I’m not going to start banning myself from eating the things I like because then I will end up seriously grumpy and will give up much more easily, it’s just about eating things in moderation.

So instead of having a whole bar of chocolate, have one square. Instead of having a whole cake, have half. Instead of ordering a large takeaway pizza, order a small.

Part of the NHS plan is also to make sure you hit your five a day fruit and veg target which is harder than it sounds! I’ve never really paid much attention to how many portions I eat a day but now I am consciously measuring it, I realise that I don’t eat enough!

Same goes for the calorie counting…

Now that I’m counting the calories in everything I eat, I realise how much I was over-eating before. I would keep eating and eating and normally it wasn’t even because I was hungry. In fact, my body hardly needs anything to keep me going. According to the BMI calculator, due to my weight I need to be eating 1,600 calories a day and I am SHOCKED at how fast I can use those calories up. I dread to think how many calories I would have been eating before.

I’m also making sure I drink at least 1.2 litres of water a day to keep myself hydrated and thankfully water is calorie free so I can have as much of that as I want!!

I’m actually quite excited to be following this plan and I LOVE how the NHS provide you with check sheets for you to measure your progress each week. The whole plan is for twelve weeks and I am hoping to stick to it for that long. I find that I can follow things a lot easier if there are rigid plans and a structure to something. Before when I’ve tried to eat healthily I’ve found that I just don’t have the ability to keep track very well!

This isn’t something I’m doing as I want to be skinny (that would be nice!) but something I’m doing because I want to be healthy and happier and full of energy, rather than sluggish because I’ve eaten too much.  I want to give myself the best possible chance of living a long and healthy life and I know that I’m never going to be stick thin (it’s not in my genes!) and I don’t mind about being slightly large. I just want to be healthy and give myself the best chance of living a long life!



If you fancy giving it a go too then there’s all the information here. Good luck! I shall keep you all updated on how it’s going.