Some examples?
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I have the most progressive disease my Gastroenterologist
has seen.
-
In a three-month period, my colon disintegrated
but I didn’t present with a flare up of IBD!
-
My GYN surgeon removed a tennis ball cyst off my
ovary which should have been causing tons of problems, but wasn’t
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When I got sick, I was really sick; without much
indication.
See? Didn’t I tell you?
Things for me come
all at once or not at all.
I am currently sat doing not much because I cleared my to-do
list to have a couple days of down time. Why?
Well, in a couple weeks I start a new job. Almost 70 miles
away from home. And this weekend, my OH and I go there to find my rental
property for the first six months.
All the scary, big,
life changing feels, right?
Thing is, I could have found a job closer to home. I could
have found a job which would mean me and my OH could have lived together next
year. I could have found a job that was just a job nothing more. And that would
have been me, this time last year; pre-surgery, pre-ostomy. I would have
settled for a job because it was money and I needed money. It was low risk, low
responsibility and it was just a means to an end. I’ve felt like this about
many jobs in the past; always thought it was safe to take a job I didn’t like because
who would want anyone to work for them who was chronically ill, unable to show
true commitment?
But it’s not me now.
The last six months I have felt incredibly well. I wasn’t
expecting it and I admit, it was beginning to freak me out; I’ve never been that well with my Crohn’s in
all the years I’ve had it so far, I hadn’t expected surgery to be so… life
changing. So, by being so well, I’ve pushed myself. I’ve worked hard on my own
blog, reached out to people and sought opportunities I would never have dreamed
of before. Admittedly, I’ve had the free time to be flexible and explore these opportunities,
and finally, it’s all paid off.
My job offer was 40% luck and chance and 60% recommendation and
me, in all my gutsy glory.
I don’t mean to be big headed, I hope this does not come of
like that, but jeez I still can’t believe it, all of this is happening and its
happening to me.
So, in between all the stress of finding a place to live,
moving to a new part of the country, starting a new job – it’s been 14 months
since my last one, yikes! – I am
incredibly proud of myself. I am internalising all of that so that on
my first day I don’t bolt – panic and lose all confidence. And to anyone else,
this is just a job and it’s not a big deal but it is to me. I have worked hard
since surgery, whilst recovering, I’ll add, to figure out my plan; of what I
hope to have my life be. It’s a solid picture now, instead of the blur it used
to be. It’s filled with a house, my OH, some dogs and plenty of food. And it
feels achievable for the first time in five years, since the diagnosis. Things
finally feel stable, when I once felt so unsure about my life, myself and what
I was actually doing. I don’t question things these days, my mellow attitude comes
from – I hope – of years of learning to live with a chronic illness.
And maybe this will change if I get sick again – which is a
possibility, a chance it could happen – but I am hopeful my ‘new’ attitude
doesn’t falter if it does.
I hope this change, this welcomed change, is going to stick.
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No judgment, no hate, because it is already tough enough being a girl.